This photo represents the unknowns in my life as a multiple myeloma patient. One of my biggest concerns I have is that something serious will happen to me resulting in an extended stay in the hospital. During a previous chemo treatment I contracted a rare blood disorder called TTP was rushed to the ER and spend 12 days in hospital. So this possibility remains in the back of my mind each day.
I’m happy to state though, that each night as I lie in my bed, I don’t feel stressed or worried, I feel at peace. Another day is complete, I’m ready for tomorrow.
My weight remains about 20-25 pounds above pre-chemo weight due to the dexamethasone (oral steroid), which contributes to my ongoing fatigue. Overall I’m doing ok. Staying positive, loving photography, and happy for amazing friends!
To recap: Last Sunday I completed Cycle 7 Week 2. I have multiple myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex). On July 27th I began my seventh 28 day treatment cycle, 21 days on (4mg Pomalyst chemo pill), then 7 days off. I take 3 dexamethasone pills (4mg) every Monday.
Weekly chemo-inspired self-portraits can be viewed in my flickr album.