Yep, life marches forward.
2016 is just around the corner! Can you believe it?!
For me… Same story… Different day..
I’ll be brief this time, and post more pictures than words…. Well, I’ll try :)
This amazing singular sunflower suddenly grew from where we have a seed dish for the resident (wild) sparrows. It’s so giant and so vibrant! My computer faces the window looking out to our backyard, so I’ve been watching it’s miraculous growth minute by minute. Although I don’t leave the house much, I am so very fortunate to have such spectacular natural beauty surrounding me all the time. Yes, myeloma completely limits my life, but my life is certainly not limited!
When I do go out, people are always so surprised how much hair I have now.
My response: “it’s hair on steroids”!! Since it’s growing out so successfully, I would be kinda sad if switching chemos thinned it again, but actually I found a shaved head very freeing!
Speaking of going out, I did finally make it into my office once last week. Wow, what an accomplishment. Ugh not only is the unpredictable volcanic activity so limiting, so is the EXTREME FATIGUE from my super low WBCs, ANC, etc. But once I’m out, I pep myself up and try to be a bit of who I used to be. I also stopped by my local pharmacy, and picked up a little rainbow of anti-volcanic-poop potions. Lol, who knew it came in so many flavors! I should have snapped a pic of all the cheery options available, as I only bought a few. (Ah, the things that excite a cancer patient!) The clerk smiled and asked if I found everything I was looking for, and I smiled back and said yes, and in almost every color of the rainbow!
Speaking of going out, after corking myself up on Imodium to make it into my office for a few meetings, I was able to enjoy another few hours out of my house the next day. Sometimes, I am so successful at corking myself up, I actually get a day or two relief, before the angry volcano get really angry and visits me again. I’ll spare you the angry “backfire” backlash descriptors!
My sweet artist friend Kathy has been inviting me for a year or more to come to one of her creative painting/collaging workshops. I haven’t been able to, due to my completely unpredictable GI situation and debilitating fatigue, but also I just haven’t felt very inspired or creative. (Crazy how cancer sucks the life out of me! Duh!) But surprisingly, it finally worked out, and look at these cool creations with these sweet ladies!
M-Protein = 1.01 (down a bit!) but- normal/remission = Zero
IgA = 1530 = (down a bit, but still almost 4x high normal) 70 – 400 = normal range
ANC = 1.3 (low = bad) normal range = 1.8 – 7.7
Doesn’t the sunflower look like a perfect birdie umbrella?!
You refresh, inspire and energize me!