As noted in a previous post, I participated in a panel hostel by CureTalk during which we discussed the issue of cure versus control in Myeloma treatment. My fellow panelists (Jack Aiello, Gary Petersen and Pat Killingsworth) and I discussed a number of questions, including the following:
- Right now, there are two possible therapies that might “cure” select patients; donor transplants and Total Therapy. My question is this: From a patient’s perspective, are either of these intensive therapy options worth the small risk of a possible cure?
- What does “quality of life” mean to you? How poorly would you have to feel before deciding to stop a therapy that might significantly extend your life? and
- Specifically, if you were given the option of living five years relatively drug free, or six years using aggressive maintenance therapy all six years- complete with a long list of side effects – which would you chose and why?