Taxing Times

Are you feeling “taxed” today? (ha ha sorry!) Imagine if having cancer was a “tax deduction”! Stupid Myeloma, you “tax” me mentally and physically! Ok, enough of tax-day puns :)

I really wasn’t going to post today, 4-15-15, but I receive so many kind inquiries, comments, messages, emails, that many of you are now regularly checking in on the FIVES! Guess I really started a trend here when I mentioned this would be my year of the Fives and I would post on the 5th or 15th or 25th.Thank you for paying attention to my numerical silliness, and looking forward to my “On the Fives” posts.

So not to disappoint, here I am sneaking a post in under the 15th wire.

Not much new to report since my previous on-the-5th blog, where I updated my yucky status and stats. My now over-used response to “How are you doing Julie”, is… “Different day, Same story”. Side effects and daily challenges have become ridiculously predictable (kinda a good thing), but I’ll just never get used to being a sickie and feeling so lousy, so much of the time, and being so limited in what I can and cannot do.

But a bigger story than me, is my son’s girlfriend’s mom who has been hospitalized since the end of March for her Allogeneic (donor) transplant. She was diagnosed last September with CLL (lymphoma), stage 4/4. Immediate intense chemo for 4 months, then an Allogeneic (donor) Stem Cell transplant. Fortunately her brother was a “perfect” match, and she is half way through the torturous process. She’s had a very challenging time with all the treatments and awful side effects. My gut aches for her, knowing first hand what she’s going through. She had several months of high dose IV chemo at the beginning of the year, then 11 radiation treatments just prior to SCT, then high dose chemo again, then the transplant/infusion March 31. Ugh! Such a chemo-warrior she is! As she battles to heal, we look forward to our transplant success celebration.

We went to visit her this past weekend, and it was the first time I visited the actual hospital floor where I had my SCT July 5, 2010. Quite emotional for me, walking the halls, being in the hospital where I experienced my month long transplant ordeal, now almost 5 years ago…

I will never, ever, forget these views

It’s truly amazing what a person can tolerate when required to, to save your life… And can you even believe: us 2 moms, both diagnosed with blood cancers, 5 years apart, same doctors, same hospital, similar treatments…  
Really now Universe, what IS this all about?!

One day at a time
One challenge at a time

So all of you want me to travel, do that bucket list, go to Hawaii? Read this!
The story about the woman with cancer, removed from a flight, due to the airline’s concern about the safety of her traveling from Hawaii to CA! And what was her diagnosis… Myeloma of course!

About Multiple Myeloma (MM)
Multiple myeloma is a cancer of the plasma cell. It is the second
most common blood cancer. An estimated 24,050 adults (13,500 men and
10,550 women) in the United States will be diagnosed (in 2014) with MM and
an estimated 11,090 people are predicted to die from the disease.  
five-year survival rate
is approximately 43%, versus 28% in 1998.

Live happy, live well, and make a difference somewhere, somehow, with someone or something as often as you can!