My last post started to discuss the fact that life is pretty rough at the moment for me. It’ s been very different to when I went through treatment 9 years ago when other than periods of exhaustion, I didn’t … Continue reading →
I’ve been a bit quiet on here the last week, largely for two reasons. We’ve been dealing with my dad after his fall last month, and also, there’s been little change or reason to write much about my treatment. The … Continue reading →
So I’m back into hospital today for the next tranche of Darathumabub, Dex and Velcade. It should be a much quicker experience this week and whilst last week was two days of 9 hours, this week sounds like it’ll just … Continue reading →
So after months of talking about this I’m off. I started my chemotherapy yesterday and am on Darathumabib, Velcade and Dexamethasone as my main treatment with a bit of zometa and a nice little selection pack of other drugs from … Continue reading →
In March my Myeloma Specialist/Hematologist provided me with 3 options, should we need to change my chemo. My current treatment is Pomalyst + Ninlaro, which are chemo pills. At the time, my cancer levels (m-protein) had been stable for the … Continue reading →
The post Week 176 of chemo complete: My 3 options when I need to change treatment appeared first on Fade to Play.
I’ve started writing on Medium.com which means I’ve stopped writing here. In addition to that, I was cancer free from my transplant till my 5th year anniversary – almost to the day. With that said, below area few links to my most rece…
It’s been two months since I last published a blog and let me tell you this, it has been quite the two months. After having this wretched disease for over five years, I thought little would surprise me. Well, I expected the whole looming death part to have a different trajectory to the routine I […]
Well, gang- This Velcade/Revlimid treatment has really clobbered him.Over the course of 8 days, he was admitted to 2 separate hospitals overnight.His neuropathy started traveling up his legs, just below the knees.He gets extremely dizzy and almos…
He had been feeling very weak and woozy since last week. He basically spent the weekend in bed.
On Monday, we headed into Bogalusa to have his weekly blood work done. I dropped him off at the door to shop and returned to find out that he couldn’t make the walk to the lab. They kindly gave him a wheelchair.
Yesterday was a FULL day. He had an MRI appointment at 11:30 at the hospital. Then, the Cancer Center nurse asked us to come right over. She had looked at his blood work to see that his Potassium was way down.
So, he got his Velcade injection, followed by a 2-hour infusion of Potassium and liquids. (Saline) Our Oncologist was on vacation (again), so one of his associates gave him a prescription for daily Potassium supplements.
He felt GREAT last night.
He felt GREAT this morning. Got out of bed, made his own breakfast, watched television, then got up, started to walk and got dizzy.
There’s no doubt that his blood pressure dropped and he was too much in a hurry to get moving. So…. he’s promised me that he will sit for awhile. Slowly stand for awhile. THEN walk.
So, this is all very frustrating, but we seem to be getting somewhere with the Potassium and Fluid infusions. And happily, there seems to be a better communication with his health care team.
Back to the Cancer Center on Friday morning for Velcade, then he’s got the next week OFF. YAY!
Well it’s been a real struggle. Apart from the transplants this may have been one of the toughest regimes I’ve been on. But it is working and so it gives me the oomph to get through it. My results have been as follows. I started on about kappa 2,500. After round one the levels went […]