Normalization – Parquet Courts *
If I end off repeating the same thing in several conversations, it’s probably a sign that I should have posted it here. So… an update, particularly for those who have spotted me out and about a bit more than my recent version of “normal”.
The last week I have felt significantly better. Like I’ve emerged from a hole. I don’t know if this is just a good week, or if I’ve turned a corner. But it’s welcome either way.
I’m only half way through this stage of my treatment, so a long way to go yet. One of the difficulties, at the outset of treatment is that many of the side effects (anaemia, immune-suppression, pain) are the same as myeloma symptoms. In the short term, it makes things worse. It may be that my myeloma is now a bit more under control (I’ll have some new numbers in another week or so), and thus I’m simply more able to tolerate the treatment. If so, double good. The next 3 months may be better than the last 3. A relief. The last 3 have been awful.
There are still problems – mostly fatigue, bone pain, and posture – and I’ve still got the DEX to deal with. But compared to just a few weeks ago, it’s very much manageable. (A month ago, I was just home from my last internment in the haemo ward. It’s really not so long.) And I’m able to think clearly, without the fog, which is a massive improvement. Body and mind. Both important.
It’s half term next week. We would normally head for the airport, but cannot. Instead, we’re off to south Devon, which should be lovely. And I’m hopeful I will be able to really enjoy it, rather than just exist, which was the limit of my ambition until only a few days ago.
Living – as I have been – with the goal of mere survival is all very “well” (as long as success isn’t really in too much doubt). But it isn’t much fun. Now, fun seems attainable.
* Lyrics choice for those with a taste for art-punk. That’s a few of you, but maybe a select bunch. Everyone else… get with ;). While we’re at it, here’s one for anyone who has recently – as I have – been watching Wild Wild Country (on Netflix). About the Rajneeshee commune in Oregon in the 80s. Obscure subject matter, but I recommend it, if only to remind oneself how strange the world can be, and that our own destiny is as yet unwritten.
Still you’re steady with me always carrying the melody. Smiling all the while the paint chips off my mala prayer beads
Mardi Gras Beads – Parquet Courts