Maintenance Mode

Quick update on the stomach bug. Cassie was awarded the gold star of domination as she was the single soldier combating Ocean and Iris’s ralphing, while wounded herself by the same bug. Fortunately this battle lasted only 24 hours. I think Cassie is still a little depleted from her heroic effort that successfully kept the ever-so-happy Ruby and me safe from the invading stomach bug that waged war on our household.

Monday marks the end of my first 21 day cycle of maintenance which kicks off 7 days rest. At this point I am down to two side effects: (1) neurothapy (2) fatigue. They both present more as the day progresses, but are manageable, especially in comparison to the side effects that hit me when I started this treatment journey back in October 2009 (re: 12 days of projectile vomit).

I have had enough energy to shovel the affects of Snowmaggedon, and on a more enjoyable note, take Ocean ice skating for his first time this season. He dominated the ice and I am so thankful that we are able to share in these experiences; especially the hot chocolate! Ocean has also decided his favorite wintertime activity is throwing snowballs at Daddy. Good thing he throws like a 4 year old.

Much love to the Myeloma community and everyone following this crazy journey. -Phil


The Stomach Bug has arrived

With a weakened immune system thanks to a couple of stem cell transplants and heaps of chemotherapy, getting any bug is like catching the plague. This morning I (Phil) woke up to a puking Iris and a mommy who is not far behind. Ocean, Ruby and I are holding strong on the first floor of the house while the sickies are sticking to the second floor in attempt to quarantine the stomach bug.

It’s one thing to have a down trodden immune system :( but it’s extremely challenging to stay healthy when you have three young kids high fiving germs every time you leave the house. It’s also not very fun wearing a mask in your house, but you do what you have to do to stay healthy.