We went to Tulane yesterday. It was one of those “good news – bad news” things.Dr. Safah said that he had ZERO M-SPIKE. That he was in remission after just a couple of rounds of chemo months ago.BUT-He’s got a new lesion on his “good” hip.S…
We’ve had a busy couple of weeks. Today Dom completed his 5th radiation treatment on his left hip. Only 5 more to go.We’re meeting with a gal at the Slidell Cancer Center on Monday to discuss medications and insurance.His last radiatio…
This was taken on Wednesday. The image is flipped. The area circled on the right is actually his LEFT hip. This is where they suspect a Plasmacytoma….and where he is getting radiation. Notice the difference between his “good” hip and the affected hip.
We finished up “day 2 of radiation” yesterday. 8 more to go. The radiologist warned him that although he feels nothing now, the pain will be coming from surrounding nerves around the hip that will be affected by this radiation.
We have the weekend off, and then back at it Monday morning.
Solitary plasmacytoma is a rare disorder that is similar to multiple myeloma, although patients do not have myeloma cells in the bone marrow or throughout the body. Instead, patients have a tumor composed of plasma cells that are restricted to a single area of the body — usually the bone, but sometimes an organ.
At Memorial Sloan Kettering, our experts diagnose solitary plasmacytoma when a biopsy of the tumor detects the presence of plasma cells, but additional tests do not reveal signs of multiple myeloma — such as amyloid protein in the blood and urine, or the presence of myeloma cells in the bone marrow.
*THIS IS DOM…. bone marrow and blood work have been fine*
Our doctors can sometimes cure solitary plasmacytoma of the bone with radiation therapy or surgery to destroy or remove the tumor. However, 70 percent of patients with solitary plasmacytoma eventually develop multiple myeloma and need additional treatment such as chemotherapy, possibly combined with stem cell transplantation.
*This is DOM also*
When this type of tumor develops outside the bone — in the lungs, throat, or other organs — it is called an extramedullary plasmacytoma. For more than half of patients with extramedullary plasmacytoma, the condition is cured with radiation therapy. Less frequently, patients with extramedullary plasmacytoma develop multiple myeloma. Our doctors also can treat this progression of the disease with chemotherapy and, for some patients, stem cell transplantation.
Well, gang- after complete remission for over 7 years, his MM has returned.His blood work and bone marrow biopsy showed absolutely nothing alarming. His hip had really been bothering him, so Dr. Safah ordered an MRI.We went to see her on Th…
In discussions with my physician regarding the lesions in my bones (in one case leading to rib fracture) we surveyed treatment possibilities. I was expecting to be referred for beam radiation since that was the treatment of choice for me on three prior occasions. Radiation is primarily for pain control rather than combating the cancer. […]
“Whaaaaa aw ma-a-a-n owwww! *@*#$%^#$%#(*(@$#^&$%!@*!()$#*^@!(#$$ [censored]” I screamed every expletive I knew and a whole bunch I made up. The world had gone completely white and was overlaid by even more brilliant explosions of light. My vision tunneled down to a pinpoint and then went dark. The pain was so exquisite I passed out from […]
A quick update.Went to the oncologist last week for a 6 week post radiation follow up. All is well; the two soft tissue plasmacytoma on my skull have reduced as expected. I asked for my hair back and all I got was a smile.Unfortunately 3 more lumps hav…