My last post started to discuss the fact that life is pretty rough at the moment for me. It’ s been very different to when I went through treatment 9 years ago when other than periods of exhaustion, I didn’t … Continue reading →
Well that’s probably enough to put most people off reading any further but I’m really struggling today and have been for a couple of days. I can’t really say why but the last 36 hours has seen me move from … Continue reading →
I’d been feeling more fatigued than usual leading up to my blood test – chronic fatigue is one of the symptoms of multiple myeloma and I wondered whether my cancer levels were still reasonably stable. Unfortunately, my August blood test … Continue reading →
The post August blood test results: Cancer levels doubled, feeling a bit nervous appeared first on Fade to Play.
I had a good doctor visit. As I mentioned my numbers are going up (kappa light chains) but as he said it is slowly going up and I’m a long way to where I started out 3 1/2 years ago at 1010 mg/L kappa light chains. So I’m not ok and not panicking. I went […]
I’ve been a bit quiet on here the last week, largely for two reasons. We’ve been dealing with my dad after his fall last month, and also, there’s been little change or reason to write much about my treatment. The … Continue reading →
Well normally the first thing I do when I get into hospital is to write this blog and give an update. Today, I’ve been really tired so have only just got round to doing it….but the good news is that … Continue reading →
So I’m back into hospital today for the next tranche of Darathumabub, Dex and Velcade. It should be a much quicker experience this week and whilst last week was two days of 9 hours, this week sounds like it’ll just … Continue reading →
So another day on and I have to say this hasn’t been the relatively easy experience I had back in 2010. I don’t know if it’s because I’m older, whether it’s because my body is weaker second time round, whether … Continue reading →
I would apologise for my language but genuinely I now understand what I didn’t last time I had treatment. People used to talk about the Dex effect and it turning people into a Jekyll and Hyde character – I never … Continue reading →
June 26, 2019.
After a lovely, easy, three-year ride on a two-drug myeloma
regimen, my right shoulder was hurting and a PET scan showed a lesion (a
collection of myeloma cells showing bright red) in my right scapula.
M-spike and IgG h…