I wanted to share this link with my readers, because it’s an important discussion about cure vs control and other aspects of myeloma treatment or management. http://margaret.healthblogs.org/2011/08/02/the-cure-versus-control-debate-a-new-blood-study/ Please read it and let me know what you think. I’ve long thought I probably should have held off on treatment for as long as possible, and my … Read More →
From patientpower.info. Dr. Berenson talks about Zometa, Vitamin D, Calcium, Stem Cell Transplant and other treatments for multiple myeloma. Myeloma Update from ASCO from Patient Power® on Vimeo.
This was done in 2007, when Ms. Ferarro was in remission. She expressed concern in this video about the fact that drugs that allowed her to stay alive were not available for all. This continues to be the case. Unless you have a lot of money or good insurance, you may not be able to […]
I’ve been taking thalidomide for the past 4 years, and putting up with the gradually increasing neuropathy. The sudden-onset muscle cramping, however, does get downright annoying, especially when one of my super exciting dreams is interrupted by a golf-ball sized muscle cramp hitting in the calf of one leg. An interesting question comes up: does … Read More →
When my hair started to fall out I prevented a big mess by shaving my head. For men in SoCal a completely bald head is a fashion statement, so I never felt out of place. However, my sons and grandson decided to make sure I was OK with being bald: they went and shaved their … Read More →
I’m with Gail on the wigs – I got a beautiful wig before my hair loss from a special salon that deals with cancer patients – never wore it! Luckily, my insurance paid for it – it was several hundred dollars. It just looked too artificial to me and scarves, hats, baseball caps were more […]
Okay, here’s a different story about hair….Mine did the Malphalan Wallop too and the falling out was so odd….I really didn’t know what would happen of course, so I tried to baby what I had (falls out over a few days, rather quickly)….and before it was ALL gone, I had these wisps that made me […]
These things are all unpredictable but can turn out very well. When I was diagnosed I had rapidly graying brown hair. After Chemo, it came in jet black, but then fairly quickly reverted to its original brown. 7 years later …