What’s next?

This is a busy week with appt’s almost every day.

Today I have an appt at DMV, yes, the dreaded DMV, to get my license renewed and try and get the real ID. The real ID requires a certified birth certificate and lots of other proof pf residency things. One reason I persisted in the NYC birth certificate debacle is I knew that this was coming. So we’ll see how it goes and I’ll report back.

Tomorrow is clinic and labs and my daughter has volunteered to drive.

Wednesday I see my oncologist so I didn’t want to have to drive 2 days in a row. I’m going to go over my old lab results when my light chains were over 1,000 mg/L. I just want to hear his assessment of when to be more concerned. I’m guessing he’ll say the same thing, that when my numbers are much higher.

Then Thursday is open.

Friday is back down to the urologist for an endoscopy to see if there is any blockage or how does the prostate look? It is an office procedure so no sedation.

We also need to get the oil changed in the car and will do that Thursday. B said he’d go. So that would be his first time out driving the Santa Fe in a while. He’s definitely able to do that now and isn’t shakey. So progress!

The zone this week is the living room and I finished that yesterday. Since our front room is small and there’s not a lot of clutter I was able to finish it in about 15 minutes. I washed windows, dusted, checked my plants and washed the mirrors. That’s about it. I do look regularly what to declutter but right now I’m content with what’s in the bookcase and also the Heywood hutch. In the Heywood is my pinecone ware so that stays. I do love looking at it and using it too!

Early morning

We need to be out by 6:30 so we can get his labs by 8:00 am in Sacramento and then clinic is at 8:30am with the NP. I think we will be out quicker this time.

  Speaking of labs my numbers came back with another increase:( So Kappa is at 25. Lambda went down to 11.3 but with that, the ratio went to 2.25. It’s still not alarming numbers and only slightly over high normal but it is a trend for sure. High normal for the ratio is 1.65 so .6 over. I’m sure my doctor is not worried at this point and I see him next week so we can talk.

Anyway, this is a good lesson for me to not obsess and just know treatment will resume at some point. I’m actually proud of myself for not being too nuts about it.  I guess that’s a good thing?

After clinic, I’m going to the gourmet store called Corti brothers. When we first moved to California in 1975, we would shop at the other Corti bros location. I had just started graduate school at Sac State and we practically lived in Sacramento. We were living in Foresthill(the same area we’re in today but not the same direction) and I was driving down 2-3 times a week. Back then there was little traffic on I-80 at night and during the morning.  Now any time of day I -80 is crazy. Anyway back to Corti Bros. So when I was at Kiwanis house and shopping over at Save Mart, I looked over and saw the sign for Corti Bros.  I wasn’t planning to go in till the person who owns the RV said ‘Hey, you should go into Corti Bros. ” So I did and first, the deli is amazing and I discovered they have the French ham I have always wanted to try. Of course, I thought I’d have to go to France but no, here it was. It was amazing. Since I do love cooking and food, it’s a fun store to look around in. Today, I’m getting some olives from their amazing olive bar and some special burger blend for 4th of July.

All in all, it should be a good day!

 

Things are going great!!

First things first, TODAY is my 14th year since diagnosis. I was standing in our driveway and Barclay took the phone call from the awful doctor. Doesn’t matter, here I am!!!!  So onward. Next week I get my labs in the middle of all this and we’ll see what my numbers do. Up or down??? I’ll deal with it one way or another.

It’s the weekend and B has no labs till Monday so we can relax. I’m heading over to Ikea as they charged me for 2 paring knives but I only bought one. I’m not sure how that will work but I’ll try. Plus I bought this darling fold out bed for our daughter to sleep on here but then discovered that the couch does fold down to a bed. Okay, Barclay figured it out I just kinda looked at it and didn’t connect the dots. Oh, well.  So I will return that(insert sad face as it’s really cute). But I don’t need it now and then at home I’d have to store it so, decision made.

It’s all going really well and so far and now it’s just waiting till we can go home. Although next week is labs one day, clinic the next and then repeat so going home isn’t too feasible.

Tomorrow both kids are coming down so we can have Fathers day here.  They are doing a great job keeping things going at home. Which, surprisingly, is a lot of work mostly due to having pets, chickens and large garden areas.

We are off for a small walk and BTW Sacramento is having a serious cool down so we are VERY comfortable…. Todays high is only going to be 84 so really nice.

Decisions…..

So yesterday was insanely busy.

We had to be out the door at 7:15am to get to the local oncologists’ appt. That went well. Then B had to go get his labs.

Then we decided to go get bagels at our local organic bakery because we were going to head to Sacramento to check out the Kiwanis house and we wanted to AVOID the 8 am traffic. So we relaxed and enjoyed our coffee and bagels.

We had no stops with traffic and got down to UCD med center in 45 minutes. First, we went and toured the Kiwanis housing and as expected the rooms are quite small and the shared kitchen just didn’t do anything for us. BUT, we toured the RV parking and LOVED it.  So there is a possibility of using a friends RV or if we moved quickly buy a used small one that we were planning on doing in the fall anyway.

We asked the social worker to put in the request so at least we have that in place. There’s no guarantee but hopefully, that would be a possibility.

Then while we were there the social worker called and said there may be a problem with B’s brother’s blood something that has an antibody in it so B needed to get a blood test for that ASAP. Fortunately, we were right there so we did that.

Next, we checked out the Marriot and that was crazy expensive even though very nice. There were two nights that the cost increased to $279 a night.  We ruled that out quickly.

Then we headed to the Cannabis place and B got some chocolates since smoking is not allowed with the transplant.

After that, we went to the Sacramento Co-op and joined as I plan to shop there while we’re down there and then even later go once a month. It is a beautiful store and I found a few items like cranberry beans I’ve wanted. ( they’re like pinto beans). Plus they have an olive bar!!

Finally, we headed up Hwy 50 to check out the Extended stay hotel and surprisingly we both thought it was okay even if it was the furthest away. ( 10 minutes or so without stop and go traffic). Not ideal but doable so we’re going to get the referral to the Cancer Society and put that in as a backup plan.

By this time it was close to one and we were pretty wiped out. I came home and took a nap.

We’re hoping there isn’t a problem with the antibody as that would mean back to square one with the National Donor Bank. We should know in a day or two and we see the transplant doctor next week so…

I’m heading out to the koffee klatch to see everyone for the last time probably till the end of summer so that’ll be nice. I think everyone is planning on being there.

Dinner is salad and chicken kabobs( marinated in yogurt). Maybe some grilled tofu too.

 

 

 

Beginning of the week.

I’m off to get my labs this morning. Even though I don’t see my oncologist till the end of the month, I wanted to get my labs at 6 weeks to see where they are or if they’ve changed.

Then I’m going to go pay our property taxes(bi-annually), and I have to go pay the car tags on the Santa Fe.

Then home to do Monday chores. I need to wash mirrors and the window in the entryways and the sun porch. But the sun porch is ALL windows so maybe not all today.

On a super positive note, I called the American Cancer Society about there partnership with hotels for our stay after B is released from the hospital and it all sounds great. He’s in the system and when he goes in then call and set up the tentative date for the hotel. Since it will be at a reduced price, even if we are a few days different, I’ll go and check in just to keep the reservation. So very good news there.

So yesterday, inspired by “The Home Edit”. I pulled everything out of the fridge. Then I cleaned all the shelves with the help of my daughter. I had gone to Target and got some plastic bins for specific things to group. I’m pleased with it all.

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It looks all fresh and bright.

Today I might work on the kitchen pantry which is the restaurant shelving. It seems I haven’t found the best way to work things there.  But I think I’ll take everything out and see where I go with it..

Dinner is unknown…….

 

Simple Sunday or is it??

Well, it is going to be a lovely sunny day so I’m going to enjoy that. Our yard is looking so pretty with daffodilsUNADJUSTEDNONRAW_thumb_367.jpg, and the lawns turning bright green. Here’s the flowering cherry which is the prettiest bloom I’ve seen in a few years. Last year these trees were hit with a late frost and all the blooms died.

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In the far background you can see some of the hoarders stuff across the fence! More daffodils.

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Today is a gym day and B has platelets. I’m going to drop him off and then go over to the gym.

Sunday is sheet day so I’m doing those and since it’s so nice out, I thought I’d do our comforter as well.

There’s not a lot on the agenda for today so I guess that does make it a simple day.

I’m reading a new release in ‘home organizing’ called’The Home Edit’. 91xVeNilguL._AC_UL436_.jpg It’s nicely presented with lovely pictures. So far I’ve gleaned a few ideas about organizing stuff. Nice book, if you’re needing some help putting things together. I’m going to pull everything out of the refrigerator today and give it a good clean.

This week we are in the Entryway, dining room(which we don’t really have) and porches. I’m planning to wash windows sometime this week as well.

Update:

 

We went to town. I went to the gym and then was going to pick B up but he had a reaction(second time) to the platelets. So he had to stay and then they sent him to the ER.

He’s home now and all seems ok.

Dinner is roast chicken.

 

March has arrived!!

Well, it arrived and guess what? It’s still raining. (and snow in the Sierras)

We did have a break on Thursday and Friday so that was nice. Even though it was cloudy at least it wasn’t pouring down rain.

Thursday I saw my oncologist in Sacramento and it went well. I told him I was somewhat concerned about the 4 point jump but he didn’t seem worried and even gave me a look like. ..What??? it’s still n the normal range and your ratio is fine. So I did feel better.

Then I headed up to Costco for what I hope is the months shopping. I bought a huge amount and the car was loaded. But I got everything on my list. I did add in 2 more Orgain protein drinks( at almost $50) because B needs that to help keep his protein intake up. Plus you honestly can’t beat Costco’s prices on things like that.

Friday was just a gym day but it was really packed with people which I don’t like plus I see so many people NOT wiping equipment after they use it. Ahh…Why????

Today I’m taking B for labs and then just running over to the bank. I was going to go into Home Depot for some pansies or something for the entryways but with the rain, I probably won’t.  if you follow Flylady there was a second zone this week and that was the dining room and entryways.  So as I always like to freshen up the entryways with something, I thought some color would be cheerful.

Tonight I’m going to try an Instant pot pork chop recipe. So far everything I’ve made has been delicious. So we’ll see. I don’t usually cook much pork because generally I overcook it and it’s not all that good.  My daughter has made pork kabobs on the barbequed that have been very tasty though.

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FYI!!!

 

 

Five on Friday or more…

It’s been a busy week. The snow and weather have been a PITA, but we got thru. Yesterday morning there was ice snow on the ground and in the trees. It must have been like freezing rain in the early morning. The roads were a little scary.

We did recycle this week, and we went to Harbor Freight in Roseville to get a car canopy thing. This last week the Santa Fe has been iced over every morning and taken forever to defrost. So we will put that up over the weekend.

I had my labs this week and haven’t heard what the results are. I’ll probably call later if I don hear.  Usually, my doctor is really good about that but sometimes it slips thru his radar.  I go to Sacramento to see him next week.

I’ve used the instant pot daily and I am really enjoying it. I made pinto beans( which turned out great), a butter chicken, rice again and hardboiled eggs.  I really like that it is quiet and the flavors are pretty impressive. Oh, yeah, I made minestrone soup that was excellent.

Because of 2 trips to Costco, I’ve gone over our food budget but I’m just chalking it up to whatever as some of the stuff was the Orgain for B which was pricey. We bought 2 of them, plus coconut waters and nuts to help him add on calories to gain weight.  So, I’m just letting it go instead of obsessing about it. ( which I probably will do anyway)…

B has labs tomorrow and infusion on Sunday.  He will need platelets and probably blood but the blood has been 14 days so that’s an improvement. But honestly, it needs to be better.

I have finally have figured out Medicare to a point. I still need to call the insurance company and ask a few questions but I have the basics figured out so I feel good about switching by June. B’s insurance stuff gets re-upped in June so I will consider that (May 31) as the last day and Medicare to start June 1st. I’m a little nervous about it but it’s going to have to happen sooner or later.

Well, I’m off to town to do some errands.

Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Still in a holding pattern……

No news yet, but I imagine it will be in the next day or two.

B just had his last infusion today and it went very well. We’ve had so many appts though it’s hard to keep up. Tomorrow is the medical oncologist  and then he’ll know if he needs another transfusion. It looks like he’ll be getting a port on Friday so that’s going to be almost all day. Oh well, we will get thru this one way or the other.

I had my labs this morning so I’ll be getting my results by Thursday.

I ran some errands this morning including going to the bank and I used their Coinstar to do our annual sealed pot of change. It was Sue over in Wales that stated this on her blog. She doesn’t have that blog anymore but I did always enjoy her stories. The idea is you put all your change in a jar for a year and then cash it in and use that for something.  I think we’ll just save it for something special when we can travel again.  I’m hoping B can do some short trips once this drug kicks in. (fingers crossed).

I went into Goodwill and got a small stainless steel bowl to put water in for the wood stove. I kinda was looking for something cast iron but that was probably a long shot. So I added some cinnamon sticks, cloves and orange essential oil to the water. The bowl was $2.19.

I also took B’s Santa Fe to the car wash. I need to do my VW next as it is really dirty.

Last night I made a crock pot chicken with mushrooms and then at the end you top with swiss cheese and bacon crumbles. It was delicious.

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Then and early Christmas present to myself was these really cool La Parfait jars. A vlogger I follow uses these for all sorts of things and I really like the look.

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I did carrots, olives, and the top one is left over cream cheese. I’m definitely ordering the next size up for other things.  I love the look of food in jars like this.

I’ve also been putting together glass type bento boxes for B when he’s in the infusion center.

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Mostly some cottage cheese, apple slices, olives, and nuts. This way he can eat something while there.

This week the Flylady zone is the bathroom. Since out bathroom is so small it doesn’t take long to do the whole thing even wiping all the shelves, and doing the window.  I’ve had a heck of a time getting the right shower curtains though. Target has had some great liners we’ve used in the past but they’ve discontinued them so I bought another kind that was similar but they just weren’t drying.  So then I went and bought clear plastic liners to go on the inside of these but it was all too heavy and kinda claustrophobic. So I went back yesterday and spent 20 minutes looking at my choices and finally got a liner that is light weight. I think it will do the trick. I still need to trim the bottom as they hang down in the tub to much and then would just stay wet. Our tub is an old , very old clawfoot tub we put in when we first moved in. So the shower curtain rod is a ring around the top. So I always need 2 curtains or liners.  When we remodel the bathroom next year the big decision is the tub going??? It’s a big step up into the tub which is doable now but age has a way of catching up to us.

Anyway…….

Tonight’s dinner is unknown, but I may do leftovers or something from the freezer.