Decisions…..

So yesterday was insanely busy.

We had to be out the door at 7:15am to get to the local oncologists’ appt. That went well. Then B had to go get his labs.

Then we decided to go get bagels at our local organic bakery because we were going to head to Sacramento to check out the Kiwanis house and we wanted to AVOID the 8 am traffic. So we relaxed and enjoyed our coffee and bagels.

We had no stops with traffic and got down to UCD med center in 45 minutes. First, we went and toured the Kiwanis housing and as expected the rooms are quite small and the shared kitchen just didn’t do anything for us. BUT, we toured the RV parking and LOVED it.  So there is a possibility of using a friends RV or if we moved quickly buy a used small one that we were planning on doing in the fall anyway.

We asked the social worker to put in the request so at least we have that in place. There’s no guarantee but hopefully, that would be a possibility.

Then while we were there the social worker called and said there may be a problem with B’s brother’s blood something that has an antibody in it so B needed to get a blood test for that ASAP. Fortunately, we were right there so we did that.

Next, we checked out the Marriot and that was crazy expensive even though very nice. There were two nights that the cost increased to $279 a night.  We ruled that out quickly.

Then we headed to the Cannabis place and B got some chocolates since smoking is not allowed with the transplant.

After that, we went to the Sacramento Co-op and joined as I plan to shop there while we’re down there and then even later go once a month. It is a beautiful store and I found a few items like cranberry beans I’ve wanted. ( they’re like pinto beans). Plus they have an olive bar!!

Finally, we headed up Hwy 50 to check out the Extended stay hotel and surprisingly we both thought it was okay even if it was the furthest away. ( 10 minutes or so without stop and go traffic). Not ideal but doable so we’re going to get the referral to the Cancer Society and put that in as a backup plan.

By this time it was close to one and we were pretty wiped out. I came home and took a nap.

We’re hoping there isn’t a problem with the antibody as that would mean back to square one with the National Donor Bank. We should know in a day or two and we see the transplant doctor next week so…

I’m heading out to the koffee klatch to see everyone for the last time probably till the end of summer so that’ll be nice. I think everyone is planning on being there.

Dinner is salad and chicken kabobs( marinated in yogurt). Maybe some grilled tofu too.

 

 

 

Some good news

We got a letter yesterday saying the transplant has been approved by insurance and it’s a go. Also, the nurse coordinator got a hold of the donor brother and it looks like it may all be done in NYC… so very good news.  It looks like at this point his pre-testing will happen soon and then collection on the 15 of May. That means Barclay will be going in right around then. So good news and let’s get this rolling. Not that it’s like a vacation and fun but just something you want to be over.

Also, his last labs show his WBC at 4.3 NORMAL!!!!! how great is that. Not sure it’ll stay there but let’s hope.

So yesterday was really long sitting in the dentist chair for the crown and the filling.  But it’s done. Then I still need the scan for my Invisalign retainer.  The dentist also said the filling on the crown was deep and could eventually need a root canal. ANd I’m thinking to myself, ” I’ll never do that again” that was one of the worst dental things I’ve had and then it still ended up in surgery to be pulled.  I’ll just wait and see.

Today is beautiful out. I’m going to the gym and then tackle the chest freezer. Down at the bottom, I found some salmon from last summer so I’d better use that up. Also some corn I’d frozen. So I’d better get out there and see what else is there.

Today is koffee klatch day but I’m skipping and just coming home to do the above mentioned and some outside chores.

I just finished reading Flylady’s new book, The  C.H.A.O.S cure.   It was okay and had some new stuff but mostly a rehash of her stuff. Still, I enjoyed it.

Dinner is something from the freezer.

 

Five on Friday…Frugal Friday..

Well, definitely not frugal after the Ikea trip and ordering my new glasses yesterday.

The eye doctor is a really nice man and told me my macular pucker looks stable. He also said because of the diagnosis(?) not sure of its term, under Medicare it’ll be covered. So that was a relief.  The glasses I have now are called Lindberg, made in Denmark and I love them. They are expensive but since these lasted me 5 years and really I could have just kept them as my prescription hasn’t really changed. But I felt before jumping off the boat into Medicare, I better do all this stuff I can now.

Speaking of which, I was going to go into their office this morning but I’ve just had it with this week so I’ll wait till next. When I called to make the appointment, the person said: “oh, you can’t make appts for that, you just have to go in and take a number”. Great. More waiting. So that’ll be next week.

So, today is a gym day. And then to the store for a few items, cat food, half and half, and some deli stuff.

I talked with the UHC transplant person and unfortunately, the brothers travel and lodging is not covered so that was kinda a bummer and the billing is probably when he comes out of the hospital, so we know that’s going to be June. So we will have the full deductible which ( based on what they said before)is $6,000. So we’ll just ask for payments to be made or use as much as the GFM that will be left after paying for the brother’s flights and lodging.  I’m seriously, not going to worry about it.  I’m sure there will be enough stress with this whole thing to go around.

Dinner is an order out pizza. Round Table gourmet veggie, I think.

All in all, it’s been a good week. Next week is insanely busy with appts. Another biopsy, pulmonary stress test, and who know what else. But one foot in front of the other and JUST KEEP WALKING!!!

Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Five on Friday or a few more…

It’s been a whirlwind week ending today with us being out ALL day at the Roseville Hospital for the port placement. Poor B, no water or food till after the procedure so that’ll be @ 3 pm. Plus, I get to drive in crazy Friday traffic down there which will NOT be fun.

Oh well, it’ll be over soon and then onwards…..Actually having the port will be wonderful as he won’t need peripheral IV’s.

Rain today but clearing for a few days. It’s wet and damp and chilly outside.

First, off this morning, I’ll take B to infusion for platelets. His platelets need to be over 50 so they can do the surgery. So actually we won’t know that till later.  Then I’m going to come home feed the dogs and give them some time out and then head back into town.

I have Christmas dinner all planned I just need some manicotti noodles for the manicotti.  Plus a baguette for garlic bread.

We’re still trying to figure out if B will continue on PTO or what.  He’s officially off till new years but after that is the decision to work some from home and do some local stuff or keep putting in for the PTO.  Honestly, it’s a tough choice.  Work would help give him some focus but then there’s also a lot of stress with labs, infusions and then the next chemo session will be January 10.  So, I guess the best thing is to keep filtering the information and then make a decision by January 1st.

Dinner is a complete unknown as we’ll be home later. We had a pizza lunch the other day so I wouldn’t buy a pizza. Maybe spaghetti???? I’ll think about it later.

Our son is down in Yosemite till tomorrow but with the government shut down possible they will close the park. So I’ll need to text him as to whether they should leave today.

 

Oh, great news for my labs…

kappa light chains 15.5

lambda light chains 12.3

ratio  1.26

 

so Hurray, one less thing to worry about right now.

 

 

 

 

 

Picture perfect weather

It is so idyllic out this week. Mid-eighties to low and just beautiful. We even had our first little fire outside in the firepit last night. You know the season has changed when we do that. Plus I made the first Lodge dinner too. I made a vegetarian chili with the Jiffy cornbread on top. Quite yummy.

Today was a gym day and it was so-so. I didn’t feel too inspired to try too hard. We are also walking 4 xs a week now. But yesterday in the garden my foot went wrong and I felt the stress fracture tweak. I sure hope it’s nothing and only a pull on the area. I’m sick of this foot thing.

My son is back at Sac State this week. It’s a long commute in heavy traffic but he’s sticking it out. I’m proud of him. His internship is hoping to bring him on permanent at some point. What a thrill for me. I just want him to have a secure job.

Not much happening this week although my highlight will be meeting my friend Sara for a coffee. We go way back and she is just a wonderful person.:)

We had a bobcat come into the yard and get one of our chickens yesterday. I was sad. But the fact is they are around and we do let the girls out during the day to roam. But this was right below one of our gardens so close. Then on the community facebook, I read, there were 3 other bobcat/chicken encounters. Quite unusual.

Other than that, Friday will be a Costco trip as I think there are only a few more days of this sale catalog and I was hoping to get a new electric toothbrush. If not they do go on sale regularly. Plus I need organic flour and some other things.

This coming weekend we (meaning my husband) are going to be pulling off the deck on the studio (where Z lives) and replacing the whole thing. It’s falling apart so needs to get done. With a 3 day weekend that sounds good.

Dinner is something taco or Mexican like. I don’t have it figured out yet.

 

 

 

Happy Anniversary!

It’s our wedding anniversary. Wow, we’re we young!!!

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The dress was my great grandmothers from Poland.  It wasn’t a wedding dress but an afternoon tea dress, whatever that was back in those days. But the lace was all handmade. We just got a simple bouquet of blue and white flowers and I just put some in my hair.

A very simple wedding and the reception was a potluck of sorts.  It was supposed to be outside at B’s house but it was drizzling and so it was moved inside.

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A Quaker wedding is no officiated by anyone as in Quaker meetings there is no ‘minister’ as such. About 30 minutes into the silent meeting, you stand and say your vows. Then others may speak if they are inclined.

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This scroll is the official document of the wedding and all sign. We did get a license’ from the town clerk but actually, I can’t quite remember when we did that.

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The meeting house is a historical building and we had to petition to use it for the wedding. Quite lovely.

It has been a journey  and a gift to have traveled with someone from the time we really were just kids, to now older:)….old?? heck not yet…:)

Today we are going to Tahoe to tour the Thunderbird lodge which is on my bucket list to do. The Thunderbird was an estate by some millionaire right on the lake. . The only way to see it is to take the tour. I’ll write more about soon.

Then I made reservations for lunch at a fancy place that also looks out at the lake. Should be a fun day!!

Love you B, now and forever!

 

Random thoughts

We just went to the dump that is at the end of our road. About 2 miles or so.  We filled the van( well, I watched as B did it), with all kinds of junk and the insulation from under the house. that has been a huge undertaking for my husband and a very messy one. He’s wearing a hazmat suit and air mask thing.  The reason is rats!!!! Why does it have to be rats?  But NO one on our hill has cats anymore. Our 2 cats are inside and only go out when we’re with them.  Blackie our feral turned lovey cat died 2 years ago.  He was a great ratter.  So in the past year, we’ve had the rats coming and going .  We’ve done a lot like keep the chicken food locked at night, put a sonic thing under the house and traps. It has helped a lot but the damage was done to the insulation under the house and it all had to be removed.

Thus, it all went to the dump this morning plus other tidbits.  Yay!!!!  I love dropping stuff off and that much is gone.

Not much frugal happening in our life right now, just keeping the budget going. Our health insurance thru UNFI went up over a 100 a month so that’s a bummer but I’m grateful for the health insurance as it is excellent coverage.  I have my LLS grant so that covers my portion and I am so grateful to the people that donate to the Leukemia and Lymphoma Society. If you’re looking to make donations this year consider them as the donations go to research into finding a cure for blood cancers.

Our next set of projects are finishing the fence line along the property line.  This started as our chickens kept going over there and the neighbor was yelling at them. Of course, this is the hoarder who has 6 boats (abandoned), loads of crap everywhere, and then he started a garden in his ”round up” yard.  I certainly wouldn’t eat anything from his garden.  Anyway, B is putting up a fence so they don’t go over there.

Then we need to build a new deck off the studio as that one is rotted thru and dangerous.  It did last 18 years so not bad. But that might end up pricey as my son would like the deck bigger so he can put a few chairs out there.  We’ll start that sometime this month.

No big inside projects.  I had hoped for a minor kitchen redo but that’s not going to happen this year.

I’ve been out to the barn and pulled out most stuff that was in my son’s side so he can organize it.  Also, getting into the back room and taking everything out so it can get cleaned. I started washing some of the windows. The floors are dirt so B has rugs down and they need to be taken up and shook out.  It is looking all way better. B even got rid of an old cabinet and there’s a second to get rid. Hurray!!!! The space is looking much better.  This is old funky barn not a cool one so whatever we do is helpful.  We’d love to pour a concrete floor but that would be too expensive for us.

The temperatures are inching up after some really lovely mid-’80s temperatures.  We are watering quite a bit but it’s nice to have green gardens around the house.  Unfortunately, the water bill is high. $170 is high but what are you going to do. Our water is supplied by the local water company and there’s no way around it.

 

Dinner is BBQ carne asada( I picked it up at Trader Joes) and a salad.  I have some tempeh left so I’ll BBQ that for B.  I also have some garden potatoes so I may roast them up too.  We had lovely roasted veggies last night and they were yummy.

 

 

 

Happy Fathers Day!

Have a great day all you Dad’s of humans or furry ones.

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Here’s to the best dad ever!! Love you, sweetie!! I hope the ‘adult’ children get up soon to make you blueberry pancakes!!!

Just a few thoughts…

The Just Keep Walking project is winding down. May 31 st will mark the 5 year anniversary of WALKING EVERY SINGLE DAY!!!  That’s 1825 days. So, of course, I will keep walking with my husband B, but I may not mention it much. It seems 5 years is a good point to wrap it up. I still need to walk every day as I have been rarely sick and I think moving first thing in the morning ( ok, after 1 cup of coffee) has been so healthy for me.

My daughters birthday is May 29 and we got her Audible for a year. She loves listening to books and such while working in the garden. So a perfect idea, actually, it was her idea:)

B and Zephyr should be home late from Las Vegas. I guess the Elton John concert was great and then I saw he was at the Royal Wedding today. He must have jet lag:)

No new projects yet. I’ve looked around the house and there’s not much that needs doing by me. There are a few maintenance things that need to be done but that’s B’s job as I cant do them. ( like putting up another rail in the bathroom). So I guess that’s all good, although I do like a project.

This morning I meal prepped a number of meals for the week.

  • garbanzo curry with peas, this will go over brown rice
  • baked tofu to add to meals
  • French lentil salad with carrots and herbs
  • pasta salad with sundried tomatoes,herbs,kalamata olives and goat cheese.

I might make some salmon too but not right now.

I’m going to go to the gym and then straight home to finish washing the dog beds. and I might do a quick vacuum.

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so true, so true….

My life is quiet, simple, and intentional.