Last night was a Dex night. I often don’t get to sleep till 3am on the first night, but now I’ve added sertraline back into my concoction of drugs, I thought I’d go to bed at a relatively normal time. … Continue reading →
So I’m starting this post on Monday 16th September – but not posting it quite yet as I’m hoping that it’ll have a happy ending! It was my weekly daratumumab injection today – week 8 of the 10 weekly ones … Continue reading →
My last post started to discuss the fact that life is pretty rough at the moment for me. It’ s been very different to when I went through treatment 9 years ago when other than periods of exhaustion, I didn’t … Continue reading →
Well, the daratumumab and pomalyst train has left the station without me. My doctor decided that it wasn’t helping me anymore, so I’ve moved on. A few weeks ago I started carfilzomib (Kyprolis) and cyclophosphamide (Cytoxan). I also have …
I’ve been a bit quiet on here the last week, largely for two reasons. We’ve been dealing with my dad after his fall last month, and also, there’s been little change or reason to write much about my treatment. The … Continue reading →
So I’m back into hospital today for the next tranche of Darathumabub, Dex and Velcade. It should be a much quicker experience this week and whilst last week was two days of 9 hours, this week sounds like it’ll just … Continue reading →
I would apologise for my language but genuinely I now understand what I didn’t last time I had treatment. People used to talk about the Dex effect and it turning people into a Jekyll and Hyde character – I never … Continue reading →
June 26, 2019.
After a lovely, easy, three-year ride on a two-drug myeloma
regimen, my right shoulder was hurting and a PET scan showed a lesion (a
collection of myeloma cells showing bright red) in my right scapula.
M-spike and IgG h…
So after months of talking about this I’m off. I started my chemotherapy yesterday and am on Darathumabib, Velcade and Dexamethasone as my main treatment with a bit of zometa and a nice little selection pack of other drugs from … Continue reading →
I’m late updating my May blood test results. My cancer levels increased again from 3 in April to between 3 and 4 this month. However, all good, I’m happy chemo is over for now. I saw my Myeloma Specialist and … Continue reading →
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