DAY 15 FEELING BETTER

Hi everyone,
Well i am happy to report that i am actually feeling alittle bit better. i am somewhat still shaky and weak but i can EAT Yeah. today i felt like an actual person again. So i think i can say i see 3/4 of an eyeball to the light. i did go to the clinic which by the way is at the Methodist hospital today and get some more IV fluids and the doctor says that i can have the day off tomorrow but he does want to see me on Monday. My blood counts are good but the platletts are still a little low but coming up everyday. i just want to say to Don thank you so much for the prayers and comments and to Beth & Joseph who are awaiting up coming Transplants don’t let my words be discouraging because it looks like it does get better and i am hoping the end result will be good. I will keep posting and hopefully i can report good news tomorrow also. Thank you to Aunt Blanche also for yours prayers. i can’t wait to get this catheter out maybe next week if i don’t have to have IV fluids anymore. the procedure for that dosen’t sound good but it will be worth getting it out i have had it since end of Nov. Well thats it for now. Hopefully tomorrow i will be even better.

SUSAN’S JOURNEY WITH MYELOMA 2007-01-12 18:50:00

HI EVERYONE,

ITS ME —I FIND THAT THE MORNINGS ARE THE WORSE FOR ME. I GOT UP FEELING PRETTY BAD THIS MORNING. I EAT A BLUEBERRY MUFFIN AND DRANK SOME GATORADE AND YOU GUESSED IT THEY CAME RIGHT BACK UP. I FEEL SOMEWHAT SHAKY. I WENT TO CLINIC AND GOT SOME IV FLUIDS AND SOME NAUSEA MEDICINE THRU THE IV I THINK THEY CALL IT ANZEMET OR SOMETHING LIKE THAT I ALSO GOT IV STEROIDS TO HELP WITH NAUSEA. I ALSO GOT IV BENEDRYL. I SEE THE DOCTOR PRETTY MUCH EVERY DAY AND HE SAYS IT WILL GET BETTER. I CAN’T WAIT TILL THE DAY I CAN SAY YOU’RE RIGHT IT GOT BETTER BECAUSE RIGHT NOW I CAN ONLY SEE ABOUT 1/4 OF AN EYEBALL TO THE LIGHT. THE DOC ALSO SAY I MAY BE ABLE TO GET THE CATHETER OUT SOMETIME NEXT WEEK YEAHHHHH. WELL I CAN SOME WHAT EAT BUT MY TASTE BUDS ARE NOT BACK YET THE DOC SAYS MAYBE ANOTHER 2 WEEKS FOR THAT. I FIND THAT SMELLS BOTHER ME ALOT EVEN THE SMELL OF MY OWN HOUSE AND MY LITTLE DOG I CAN’T WAIT TILL THAT GOES AWAY. WELL THATS ABOUT ALL TO REPORT FOR NOW. HI AUNT BLANCHE–WISH ME LUCK.

SUSAN’S JOURNEY WITH MYELOMA 2007-01-12 17:50:00

HI EVERYONE,

ITS ME —I FIND THAT THE MORNINGS ARE THE WORSE FOR ME. I GOT UP FEELING PRETTY BAD THIS MORNING. I EAT A BLUEBERRY MUFFIN AND DRANK SOME GATORADE AND YOU GUESSED IT THEY CAME RIGHT BACK UP. I FEEL SOMEWHAT SHAKY. I WENT TO CLINIC AND GOT SOME IV FLUIDS AND SOME NAUSEA MEDICINE THRU THE IV I THINK THEY CALL IT ANZEMET OR SOMETHING LIKE THAT I ALSO GOT IV STEROIDS TO HELP WITH NAUSEA. I ALSO GOT IV BENEDRYL. I SEE THE DOCTOR PRETTY MUCH EVERY DAY AND HE SAYS IT WILL GET BETTER. I CAN’T WAIT TILL THE DAY I CAN SAY YOU’RE RIGHT IT GOT BETTER BECAUSE RIGHT NOW I CAN ONLY SEE ABOUT 1/4 OF AN EYEBALL TO THE LIGHT. THE DOC ALSO SAY I MAY BE ABLE TO GET THE CATHETER OUT SOMETIME NEXT WEEK YEAHHHHH. WELL I CAN SOME WHAT EAT BUT MY TASTE BUDS ARE NOT BACK YET THE DOC SAYS MAYBE ANOTHER 2 WEEKS FOR THAT. I FIND THAT SMELLS BOTHER ME ALOT EVEN THE SMELL OF MY OWN HOUSE AND MY LITTLE DOG I CAN’T WAIT TILL THAT GOES AWAY. WELL THATS ABOUT ALL TO REPORT FOR NOW. HI AUNT BLANCHE–WISH ME LUCK.

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DAYS 12 & 13

Hi everyone,
it’s me trying to keep you posted. On day 12 i did get out of the hospital but really don’t think i was ready. When i got home i was so weak i could hardly walk around the house. I still have issues with eating. My stomach is so upset all the time. I always think i have to throw up i have gotten quite a habit of sticking my finger down my throat so i can throw up as bad as that may sound sometimes it works(my husband hates that) but you got to do what you got to do. i think i may have a bit of sinus or a touch of a cold because i have a lot of drainage and stuffiness. Anyhow day 13 i went to out patient clinic and i had to be taken up to 10th floor in a wheel chair. When i got there i saw the doctor and he says how i am feeling is normal for now but i should be getting better soon . My White blood count is good but my plateletts are still low but i did receive some IV fluids. My stomach issues are still there and they tell me to eat eat eat and drink drink drink)easier said then done but i have to force myself. i am still very tired and weak but getting a bit better. We will see what day 14 brings. will keep you posted.

DAY 11

WELL IT;S ME POSTING SO THAT TELLS YOU I MUST BE FEELING A LITTLE BETTER- I HAVE BEEN GETTING DAILY NEUPOGEN SHOTS TO HELP INCREASE MY BLOOD COUNTS. MY DOCTOR CAME TO SEE ME TODay as well as every day.HE SAYS I MAY BE ABLE TO GO HOME TOMORROW.BUT I WILL STILL Have to go to the clinic every day for a while. the deal now is wacthing to see if i get a temp. so far so good. i was able to keep my food down today but nausea abd dierreA WILL STILL BE an issue for WHILE. I CAN ONLY Eat in baby steps. i did get some mouth sores but nothing severe.the main thing was my esophagous burning and dirrea dirrea dirrea. so hopefully i am on the up hill trend. wish me luck. hi to aunt blanche and extended family.thanks for all the prays. and thanks FOR all the phone calls and well wishes from the family. it has helped alot. well keep you posted.
susan & fAMILY

Shaved my head


When my hair started to fall out I prevented a big mess by shaving my head. For men in SoCal a completely bald head is a fashion statement, so I never felt out of place. However, my sons and grandson decided to make sure I was OK with being bald: they went and shaved their heads too!



I quickly found out that a nice soft wool beret was the most comfortable way of keeping my head warm. Since it was winter I took to sleeping with it on. I also had a stylish Safari style straw hat that served well in sunny weather, but the beret was the best.



When my hair came back in it was the same wavy medium brown as before, with just enough gray at the temples to prove I don’t dye it. My old HS classmates are mostly all gray or bald and seem to be jealous. My family doesn’t go gray much. My Mom didn’t have much gray until she was 85.



My Sis had treatment for Hodgkin’s and lost her hair. It had been dark brown and very wavy. It came back black and quite curly.


My teenage kids thought I looked pretty cool


I’m with Gail on the wigs – I got a beautiful wig before my hair loss from a special salon that deals with cancer patients – never wore it! Luckily, my insurance paid for it – it was several hundred dollars. It just looked too artificial to me and scarves, hats, baseball caps were more comfortable . I lost my hair in Jan and by June I felt it was long enough to go without a head cover (plus it was getting too warm for scarves in June) – my teenage kids thought I looked pretty cool with my hair spiked up!


But it was cold in the winter – I even had a very comfortable hat to sleep in – could not believe how cold my head would get at night – so be prepared for that.


I also had my hair come in thick and very curly – and almost jet black ! I had shoulder length baby fine straight hair my whole life – light brown to blonde in color – I always had to pay for body waves. Now I love my new hair and keep it short – although it has lightened to dark brown and is not as curley as at first.


So many people didn’t recognize me at first – always doing double takes before they realized who I was – it was very funny. I sure don’t look like my drivers license anymore!


Good luck!


A different story about hair


Okay, here’s a different story about hair….Mine did the Malphalan Wallop too and the falling out was so odd….I really didn’t know what would happen of course, so I tried to baby what I had (falls out over a few days, rather quickly)….and before it was ALL gone, I had these wisps that made me look like Yoda. Kinda silly and made me laugh. fast forward to the grow-back.


I originally had dull blonde naturally wavey hair, very thick. My hair started back in with gun-metal grey and great body, shaped to my head and looked awesome! Then as it grew it became curly curly curly, and I loved that too! It is about a year later, my hair is now back to its original color (forgot to mention the gray), very thick (maybe even thicker than before) and back to its regular ol’ color.


I did wear kerchieves and a friend made me some chemo caps (knitted out of the softest yarn) which became my favorite headress. They feel so comforting, and I wore them to bed and any other time my head got cold….around the house. My sis and I were bald simultaneously, so we had a great trade-thing going on; she bought alot of hats from that cancer hat magazine, but didn’t wear too many. The wraps that are soft and pretty were our favorites! SIDE NOTE: if your drivers license needs renewing, do it before your hair is gone)


Anyhow, by the end of the baldness, I was getting pretty darned comfy going out bareheaded and I thought I looked pretty darn good! Sort of badge of survival and proud of it!


Bottom line: it’s only hair, and it comes and goes and comes back and on the grand scheme of things, it’s a pretty small price to pay for the chance to have a life again! Take the whole thing with a grain of salt, laugh at yourself, do silly things ( I wore a hat with a pony tail attached to it for fun, too)…..and before you know it, it will be over and you’ll just look back and say, that wasn’t so bad.


Good luck, God bless and as my son always told me when I was at my lowest:


Keep your chin up.


(I wrote it on the wall by my bed when I was so so sick and it made me feel


encouraged every time I saw it)…..


Unpredictable

These things are all unpredictable but can turn out very well. When I was diagnosed I had rapidly graying brown hair. After Chemo, it came in jet black, but then fairly quickly reverted to its original brown. 7 years later the grey is just starting to return. My brother, who’s 65, now has hair completely white. While I might prefer his health, he’s more annoyed about my lack of grey.

Mark,<br>I’m a good friend of Kevin Henderson’s. …

Mark,
I’m a good friend of Kevin Henderson’s. I recently have been diagnosed with Multiple Mylenoma. I just started my initial chemo sessions with velcade/dex. Hopefully, my outcome will be one like yours. I don’t feel like this is the end of the world, only a speed bump in life. We’ll see. Hopefully we can keep in contact.
Thanks,
Lance

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