DAY 26

HI EVERYONE,
FIRST A BIG YEAH!!!!!!!!!–I GOT THE CATHETER OUT –MINE WOULD NOT COME OUT ON IT’S OWN SO THE DOCTOR HAD TO NUMB IT UP AND MAKE A SMALL INCISION AND THEN HE WAS ABLE TO GET IT OUT. THAT IS A SMALL STEP BACK TO NORMALCY FOR ME. I AM DOING OKAY –I GO TO SEE MY REGULAR ONCOLOGIST TOMORROW –I AM STILL TAKING THE ANZMET NAUSEA PILLS FIRST THING IN THE MORNING AND THEY DO HELP I CAN EAT–SO THATS ONE GOOD THING.I AM STILL WEAK –HOWEVER I DID HAVE TO WALK ALOT YESTERDAY TO SEE THE DOC TO GET THE CATHETER OUT WE PARKED IN THE WRONG PLACE SO THAT GOT ME A LITTLE EXERCISE BUT I AM TIERD TODAY. THEY SAY I WILL PROBABLY NOT BE 75 TO 100 PERCENT FOR MAYBE 2 MORE MONTHS TO COME –SO FOR NOW I WILL JUST HANG IN THERE AND YOU’RE RIGHT DON — I BELIEVE THE NURSES.

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DAY 26

HELLO EVERYONE,
FIRST OF ALL THANK YOU ALL FOR YOUR WELL WISHES AND PRAYERS IT KEEPS ME GOING. TO BETH MY COUNTS ARE ALL GOOD BUT I AM STILL WEAK AND HAVING SOME WHAT STOMACH PROBLEMS. THEY SAY IT CAN TAKE MONTHS TO GET MY TASTE BUDS BACK OR AT LEAST THATS WHAT SOME OF THE NURSES TELL ME THE NURSES STORIES ARE ALWAYS DIFFERENT FROM THE DOCTOR-SO NOW WHOS TELLING THE TRUTH. I AM WAITING TO SEE IF I CAN GET MY CATHETER OUT TODAY OR IF THE DOCTOR CAN FIT ME IN. HOPEFULLY EITHER TODAY OR TOMORROW. MAYBE I WILL FEEL ALITTLE BETTER WITH THIS THING OUT. WELL RIGHT NOW I AM JUST TAKING ONE DAY AT A TIME. I QUESS I AM SOME WHAT BETTER BUT NOT 100 OR EVEN 75 PERCENT. I WOULD SAY A STEP INTO 50 PERCENT.

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DAY 25

WELL FOLKS,
YESTERDAY WAS NOT SO GOOD I GOT UP TO GET READY TO GO TO THE CLINIC AND I WENT TO BRUSH MY TEETH AND IT GAGGED ME SO I THREW UP AND THAT STARTED THE NAUSEA AGAIN SO I WENT INTO CLINIC AND GOT SOME ANTI-NAUSEA THRU THE IV. THE DOCTOR IS TRYING TO SEND ME BACK TO MY ORIGINAL ONCOLOGIST –I HAVE AN APPOINTMENT WITH HIM ON FRIDAY AND I DON’T GO SEE THE TRANSPLANT DOCTOR TILL MONDAY. I GUESS HE IS TRYING TO WEEN ME OFF OF THE CLINIC. I AM STILL HAVING STOMACH PROBLEMS I GUESS THAT WILL COME WITH TIME. I MAY JUST BE ABLE TO GET MY CATHETER OUT ON WED. OR THURSDAY. I AM HOPING AND PRAYING FOR THAT. I’VE HAD ENOUGH OF THIS THING. TODAY I AM OKAY THE DOCTOR GAVE ME THE PILL FORM OF THE IV VERSION OF THE ANTI-NAUSEA STUFF SO WE’LL SEE HOW TODAY GOES. I AM ALITTLE STRONGER EACH DAY IF MY STOMACH PROBLEMS WOULD JUST LET UP . WELL THEY SAY IT JUST TAKES TIME SO ONLY TIME WILL TELL. –SUSAN

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DAY 23

HI EVERYONE,
I DIDN’T GO TO CLINIC TODAY-THIS IS MY DAY OFF AND I ACTUALLY THINK MAYBE JUST MAYBE I MAY BE ON THE UP SWING OF THINGS. I DIDN’T GET ANY ANTI NAUSEA MEDS TODAY AND I WAS ABLE TO EAT. MY STOMACH STILL GETS UPSET ALITTLE AND I AM STILL SOME WHAT WEAK. I CAN;T DO ALOT OF THINGS BUT THEN I CAN DO ALITTLE MORE THEN I USE TO . TODAY I WASHED SOME CLOTHES AND ACTUALLY WAS ABLE TO SWEEP ALITTLE. THE WEATHER HAS BEEN RAINY AND I HAVEN’T BEEN ABLE TO GET OUTSIDE MUCH BUT TODAY IT IS SUPPOSE TO BE IN THE 60’S AND IT IS SUNNY I HAVEN’T SEEN THE SUN IN A WHILE SO IT WAS NICE TO GO OUT ON MY PORCH AND FEEL THE SUN A BIT.I JUST PRAY AND HOPE I REPORT THE SAME TOMORROW THAT I AM STILL GETTING BETTER. WISH ME LUCK. THANKS TO EVERYONE WHO HAS BEEN PRAYING FOR ME IT MEANS ALOT TO ME. UNTILL TOMORROW–SUSAN

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DAY 22

HI FOLKS,
AS EACH DAY GOES ON I GET A LITTLE STRONGER. I WENT TO CLINIC AGAIN YESTERDAY AND TODAY AND I HAVE TOMORROW OFF AND THEN GO AGAIN ON MONDAY. I AM JUST SO SENSITIVE TO EVERY DRUG THEY GIVE ME THE DECADRONE WORKS AS FAR AS ME WANTING TO EAT AND ALL BUT I FEEL SO JITTERY AND FEEL LIKE I WANT TO CLIMB THE WALLS. SO I HAVE TO PICK MY POISON DO I WANT TO BE SICK OR CLIMB THE WALLS. I HOPE THERE WILL BE A DAY I DON’T NEED ANY OF THAT ANY MORE. BETH YES THEY DID ADD ZOFRAN BUT I GET A TERRIBLE HEADACHE WITH IT SO I AM DAMMED IF I DO AND DAMMED IF I DON’T. ANYHOW I DO FEEL A BIT BETTER EVERY DAY THE MORNING KEEP ME WONDERING HOW I AM GONNA FEEL BUT IF I MAKE IT PASS THE MORNINGS WITHOUT BEING SICK I AM DOING GOOD. I THINK I HAVE MENTIONED THE SMELLS ALOT BUT I FEEL LIKE I HAVE A SUPER HERO NOSE. I CAN SMELL THINGS A MILE AWAY OR AT LEAST IT SEEMS THAT WAY. My HOUSE CAN NOT BE CLEAN ENOUGH(WHICH IS AN ISSUE TO MY HUSBAND)BECAUSE HE DOES NOT SMELL ANYTHING AND HE THINKS I AM CRAZY BUT WHO EVER GAVE ME THIS SUPER HERO NOSE TAKE IT BACK I DON’T WANT IT!!!!!
ANYHOW AUNT BLANCHE I AM NOT IN QUARANTINE BUT I AM NOT HERE ALOT I AM AT THE CLINIC MOST DAYS WHEN THEY GIVE ME A WEEK OR SO I’LL LET YOU KNOW. WE WOULD LOVE TO SEE YA’LL ALSO.

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DAY 2O ALMOST 3 WEEKS OUT

WELL TODAY WAS NOT GOOD I THREW UP ALL DAY YESTERDAY AND TWICE TODAY. I WENT TO CLINIC GOT SOME IV FLUIDS AND SOME ANZMET AND A STEROID PILL CALLED DECADRONE(I THINK THATS HOW YOU SPELL IT) ANY HOW THE SAME THING IS SCHEDULED FOR TOMORROW, THE DOC SAYS ITS ALL DUE TO MY TASTE BUDS. i CAN EAT TODAY BUT CAN’T TASTE IT THEY SAY I HAVE TO FORCE MYSELF TO EAT SO I DID. SO FAR SO GOOD. THE SMELLS THE SMELLS THE SMELLS (OH HOW I HATE THEM NOW) DON DID YOU HAVE A SCT? CAN SOMEONE TELL ME AT WHICH DAY OR WEEK DID THEY START TO FEEL BETTER? THE DOC SAYS IT WILL GET BETTER AND ALL MY COUNTS ARE GOOD AND HE SAYS MY BONE MARROW LOOKS GOOD. but I HAVE NOT YET RECOVERED(MEANING THE VOMITING AND SUCH) WHY I DON’T KNOW HE SAYS THEY WILL JUST KEEP SUPPORTING ME DURING THESE ROUGH DAYS. THATS ALL FOR NOW.

DAY 19

LET ME START OUT BY ANSWERING SOME QUESTIONS–TO FRANCES-NO I DID NOT WORK BEFORE SCT–I HAVE NOT WORKED FOR ABOUT ALMOST 2 YRS NOW. I HAD AN OFFICE JOB BUT I COULDN.T WORK ANYMORE DUE TO BACK PAIN AND SUCH –I ACTUALLY GOT DISABILITY ABOUT A YEAR & A HALF AGO. MY CANCER STARTED OUT AS A SOLITARY PLASMACYTOMA AND I GOT 33 ROUNDS OF RADIATION AND WENT INTO REMISSION FOR 5 YRS AND THEN I GOT IT BACK IN 2004 MORE RADIATION AND THEN IN 2006 IT TURNED INTO MUTIPLE MYELOMA I GOT IT IN FIVE PLACES IN MY SPINE. THEN IN 2006 MY DOCTOR SUGGESTED THE STC. I WAS IN REMISSION GOING INTO THE SCT SO I SURELY HOPED IT WORKED AND ALL THIS WILL BE WORTH IT.IT WAS TO KEEP ME IN REMISSION LONGER. TO AUNT BLANCHE I HOPE THERE WILL BE A DAY I CAN NOT REMEMBER. TODAY WAS NOT SO GOOD I GOT UP EAT SOME TOAST AND TRHEW IT BACK UP –I THINK THE VOMITING AND STOMACH PROBLEMS SEEM TO BE MY BIGGEST ISSUE OTHER THEN I CAN’T STAND SMELLS. I AM HOPING TO FEEL BETTER SOON. I FEEL ALITTLE STRONGER BUT THE STOMACH ISSUES KEEP ME FROM MOVING AROUND IT SEEMS LIKE I JUST WANT TO CURL UP IN MY BED ALOT.MY TASTE BUDS ARE STILL NOT BACK. BY THE WAY THE CLINIC IS ON THE 10TH FLOOR OF METHODIST HOSPITAL. I WISH I COULD REPORT BETTER NEWS BUT RIGHT NOW THERE JUST ISN’T ANY I HOPE I AM NOT DEPRESSING SOME OF YOU=I LONG FOR THE DAYS I WILL FEEL SOME WHAT NORMAL AGAIN AND PUTT AROUND MY HOUSE LIKE I USE TO.

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DAYS 17 AND 18

HI EVERYONE,
DAY 17 WAS NOT SO BAD. I WENT TO CLINIC AND GOT MORE IV FLUIDS. I AM STILL NAUSEOUS AND HAVING STOMACH PROBLEMS. THEY GIVE ME ANZMET TRHU IV. BUT THEY TELL ME I CAN DO MORE AS FAR AS MOVE AROUND MORE AND MAYBE A TOUCH OF HOUSE WORK BUT EVERY TIME I DO I HURT ALL OVER ALOT OF ACHES AND PAINS. I HAVE BEEN ABLE TO EAT AND HAVE NOT THROWN UP IN 3 DAYS BUT MY STOMACH DOES HURT AFTER I EAT. TODAY IS DAY 18TH AND I FEEL THE ACHES AND PAINS TODAY. I DID EAT SOME TOAST AND KEEP IT DOWN –I QUESS TIME WILL HEAL –I DON’T KNOW–I AM SURE GETTING TIRED OF IT BUT I CAN SAY I FEEL A LITTLE STRONGER. I JUST WISH THE STOMACH PROBLEMS AND ACHES AND PAINS WOULD GO AWAY. I DON’T HAVE TO GO TO CLINIC UNTILL THURSDAY WHICH IS GOOD BECAUSE THE WEATHER IS SO BAD –I DON’T KNOW IF I COULD EVEN MAKE IT THERE TODAY BECAUSE OF WEATHER SO THURSDAY IS NOT BAD. WE WILL SEE WHAT TOMORROW BRINGS. IS THERE SOME ONE OUT THERE WHO CAN TELL ME WHEN THINGS GET BETTER. AS FAR AS THE STOMACH AND ACHES AND PAINS? THATS ALL FOR TODAY..

DAY 16 NOT SO GREAT

WELL FOLKS,
I AM UNHAPPY TO REPORT THAT I WAS NOT SO GREAT TODAY –LAST NIGHT I HAD A TERRIBLE HEADACHE AND WOKE UP NAUSEOUS.I TOOK AN ATIVAN AND WENT BACK TO BED THEN FELT SOME WHAT BETTER. I EAT SOME LUNCH AND FELT NAUSEOUS AGAIN. MY TASTE BUDS ARE STILL AN ISSUE EVERYTHING TASTES GOOD WHEN I EAT IT BUT THEN LATER I HAVE A HORRIBLE TASTE IN MY MOUTH. THE SMELLS ARE STILL AN ISSUE TOO. I AM STILL WEAK–CAN BEARLY WALK AROUND MY HOUSE . TO DAVID –YES I AM FROM SAN ANTONIO AND I AM 48 MY ORIGINAL ONCOLOGIST IS DR KALTER ALSO FROM CTRC. HE SENT ME TO DR SHAUNGNESSY FOR MY TRANSPLANT. I HOPE I CAN BE OF HELP TO YOUR WIFE. THIS TRANSPLANT HAS BEEN ROUGH BUT THEY ALL TELL ME IT WILL BE WORTH IT. I AM SEEING ONLY 1/2 AN EYEBALL TODAY. I HAVE A FRIEND THAT LIVES HERE IN SAN ANTONIO THAT HAS HAD TWO TRANSPLANTS AND SHE IS DOING GREAT AND IN FULL REMISSION –I DON’T KNOW ABOUT A 2ND ONE FOR ME–AT LEAST I CAN’T STAND TO THINK OF THAT NOW. BUT I WISH FOR THAT DAY THAT I CAN BE LIKE MY FRIEND AND BE SOMEWHAT NORMAL AGAIN. I GO BACK TO THE CLINIC TOMORROW HOPEFULLY I WILL BE BETTER. WELL THATS ALL FOR TODAY. WILL TRY TO POST TOMORROW.