DAY 23

HI EVERYONE,
I DIDN’T GO TO CLINIC TODAY-THIS IS MY DAY OFF AND I ACTUALLY THINK MAYBE JUST MAYBE I MAY BE ON THE UP SWING OF THINGS. I DIDN’T GET ANY ANTI NAUSEA MEDS TODAY AND I WAS ABLE TO EAT. MY STOMACH STILL GETS UPSET ALITTLE AND I AM STILL SOME WHAT WEAK. I CAN;T DO ALOT OF THINGS BUT THEN I CAN DO ALITTLE MORE THEN I USE TO . TODAY I WASHED SOME CLOTHES AND ACTUALLY WAS ABLE TO SWEEP ALITTLE. THE WEATHER HAS BEEN RAINY AND I HAVEN’T BEEN ABLE TO GET OUTSIDE MUCH BUT TODAY IT IS SUPPOSE TO BE IN THE 60’S AND IT IS SUNNY I HAVEN’T SEEN THE SUN IN A WHILE SO IT WAS NICE TO GO OUT ON MY PORCH AND FEEL THE SUN A BIT.I JUST PRAY AND HOPE I REPORT THE SAME TOMORROW THAT I AM STILL GETTING BETTER. WISH ME LUCK. THANKS TO EVERYONE WHO HAS BEEN PRAYING FOR ME IT MEANS ALOT TO ME. UNTILL TOMORROW–SUSAN

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DAY 2O ALMOST 3 WEEKS OUT

WELL TODAY WAS NOT GOOD I THREW UP ALL DAY YESTERDAY AND TWICE TODAY. I WENT TO CLINIC GOT SOME IV FLUIDS AND SOME ANZMET AND A STEROID PILL CALLED DECADRONE(I THINK THATS HOW YOU SPELL IT) ANY HOW THE SAME THING IS SCHEDULED FOR TOMORROW, THE DOC SAYS ITS ALL DUE TO MY TASTE BUDS. i CAN EAT TODAY BUT CAN’T TASTE IT THEY SAY I HAVE TO FORCE MYSELF TO EAT SO I DID. SO FAR SO GOOD. THE SMELLS THE SMELLS THE SMELLS (OH HOW I HATE THEM NOW) DON DID YOU HAVE A SCT? CAN SOMEONE TELL ME AT WHICH DAY OR WEEK DID THEY START TO FEEL BETTER? THE DOC SAYS IT WILL GET BETTER AND ALL MY COUNTS ARE GOOD AND HE SAYS MY BONE MARROW LOOKS GOOD. but I HAVE NOT YET RECOVERED(MEANING THE VOMITING AND SUCH) WHY I DON’T KNOW HE SAYS THEY WILL JUST KEEP SUPPORTING ME DURING THESE ROUGH DAYS. THATS ALL FOR NOW.

DAYS 17 AND 18

HI EVERYONE,
DAY 17 WAS NOT SO BAD. I WENT TO CLINIC AND GOT MORE IV FLUIDS. I AM STILL NAUSEOUS AND HAVING STOMACH PROBLEMS. THEY GIVE ME ANZMET TRHU IV. BUT THEY TELL ME I CAN DO MORE AS FAR AS MOVE AROUND MORE AND MAYBE A TOUCH OF HOUSE WORK BUT EVERY TIME I DO I HURT ALL OVER ALOT OF ACHES AND PAINS. I HAVE BEEN ABLE TO EAT AND HAVE NOT THROWN UP IN 3 DAYS BUT MY STOMACH DOES HURT AFTER I EAT. TODAY IS DAY 18TH AND I FEEL THE ACHES AND PAINS TODAY. I DID EAT SOME TOAST AND KEEP IT DOWN –I QUESS TIME WILL HEAL –I DON’T KNOW–I AM SURE GETTING TIRED OF IT BUT I CAN SAY I FEEL A LITTLE STRONGER. I JUST WISH THE STOMACH PROBLEMS AND ACHES AND PAINS WOULD GO AWAY. I DON’T HAVE TO GO TO CLINIC UNTILL THURSDAY WHICH IS GOOD BECAUSE THE WEATHER IS SO BAD –I DON’T KNOW IF I COULD EVEN MAKE IT THERE TODAY BECAUSE OF WEATHER SO THURSDAY IS NOT BAD. WE WILL SEE WHAT TOMORROW BRINGS. IS THERE SOME ONE OUT THERE WHO CAN TELL ME WHEN THINGS GET BETTER. AS FAR AS THE STOMACH AND ACHES AND PAINS? THATS ALL FOR TODAY..

DAY 16 NOT SO GREAT

WELL FOLKS,
I AM UNHAPPY TO REPORT THAT I WAS NOT SO GREAT TODAY –LAST NIGHT I HAD A TERRIBLE HEADACHE AND WOKE UP NAUSEOUS.I TOOK AN ATIVAN AND WENT BACK TO BED THEN FELT SOME WHAT BETTER. I EAT SOME LUNCH AND FELT NAUSEOUS AGAIN. MY TASTE BUDS ARE STILL AN ISSUE EVERYTHING TASTES GOOD WHEN I EAT IT BUT THEN LATER I HAVE A HORRIBLE TASTE IN MY MOUTH. THE SMELLS ARE STILL AN ISSUE TOO. I AM STILL WEAK–CAN BEARLY WALK AROUND MY HOUSE . TO DAVID –YES I AM FROM SAN ANTONIO AND I AM 48 MY ORIGINAL ONCOLOGIST IS DR KALTER ALSO FROM CTRC. HE SENT ME TO DR SHAUNGNESSY FOR MY TRANSPLANT. I HOPE I CAN BE OF HELP TO YOUR WIFE. THIS TRANSPLANT HAS BEEN ROUGH BUT THEY ALL TELL ME IT WILL BE WORTH IT. I AM SEEING ONLY 1/2 AN EYEBALL TODAY. I HAVE A FRIEND THAT LIVES HERE IN SAN ANTONIO THAT HAS HAD TWO TRANSPLANTS AND SHE IS DOING GREAT AND IN FULL REMISSION –I DON’T KNOW ABOUT A 2ND ONE FOR ME–AT LEAST I CAN’T STAND TO THINK OF THAT NOW. BUT I WISH FOR THAT DAY THAT I CAN BE LIKE MY FRIEND AND BE SOMEWHAT NORMAL AGAIN. I GO BACK TO THE CLINIC TOMORROW HOPEFULLY I WILL BE BETTER. WELL THATS ALL FOR TODAY. WILL TRY TO POST TOMORROW.

DAY 15 FEELING BETTER

Hi everyone,
Well i am happy to report that i am actually feeling alittle bit better. i am somewhat still shaky and weak but i can EAT Yeah. today i felt like an actual person again. So i think i can say i see 3/4 of an eyeball to the light. i did go to the clinic which by the way is at the Methodist hospital today and get some more IV fluids and the doctor says that i can have the day off tomorrow but he does want to see me on Monday. My blood counts are good but the platletts are still a little low but coming up everyday. i just want to say to Don thank you so much for the prayers and comments and to Beth & Joseph who are awaiting up coming Transplants don’t let my words be discouraging because it looks like it does get better and i am hoping the end result will be good. I will keep posting and hopefully i can report good news tomorrow also. Thank you to Aunt Blanche also for yours prayers. i can’t wait to get this catheter out maybe next week if i don’t have to have IV fluids anymore. the procedure for that dosen’t sound good but it will be worth getting it out i have had it since end of Nov. Well thats it for now. Hopefully tomorrow i will be even better.

SUSAN’S JOURNEY WITH MYELOMA 2007-01-12 18:50:00

HI EVERYONE,

ITS ME —I FIND THAT THE MORNINGS ARE THE WORSE FOR ME. I GOT UP FEELING PRETTY BAD THIS MORNING. I EAT A BLUEBERRY MUFFIN AND DRANK SOME GATORADE AND YOU GUESSED IT THEY CAME RIGHT BACK UP. I FEEL SOMEWHAT SHAKY. I WENT TO CLINIC AND GOT SOME IV FLUIDS AND SOME NAUSEA MEDICINE THRU THE IV I THINK THEY CALL IT ANZEMET OR SOMETHING LIKE THAT I ALSO GOT IV STEROIDS TO HELP WITH NAUSEA. I ALSO GOT IV BENEDRYL. I SEE THE DOCTOR PRETTY MUCH EVERY DAY AND HE SAYS IT WILL GET BETTER. I CAN’T WAIT TILL THE DAY I CAN SAY YOU’RE RIGHT IT GOT BETTER BECAUSE RIGHT NOW I CAN ONLY SEE ABOUT 1/4 OF AN EYEBALL TO THE LIGHT. THE DOC ALSO SAY I MAY BE ABLE TO GET THE CATHETER OUT SOMETIME NEXT WEEK YEAHHHHH. WELL I CAN SOME WHAT EAT BUT MY TASTE BUDS ARE NOT BACK YET THE DOC SAYS MAYBE ANOTHER 2 WEEKS FOR THAT. I FIND THAT SMELLS BOTHER ME ALOT EVEN THE SMELL OF MY OWN HOUSE AND MY LITTLE DOG I CAN’T WAIT TILL THAT GOES AWAY. WELL THATS ABOUT ALL TO REPORT FOR NOW. HI AUNT BLANCHE–WISH ME LUCK.

SUSAN’S JOURNEY WITH MYELOMA 2007-01-12 17:50:00

HI EVERYONE,

ITS ME —I FIND THAT THE MORNINGS ARE THE WORSE FOR ME. I GOT UP FEELING PRETTY BAD THIS MORNING. I EAT A BLUEBERRY MUFFIN AND DRANK SOME GATORADE AND YOU GUESSED IT THEY CAME RIGHT BACK UP. I FEEL SOMEWHAT SHAKY. I WENT TO CLINIC AND GOT SOME IV FLUIDS AND SOME NAUSEA MEDICINE THRU THE IV I THINK THEY CALL IT ANZEMET OR SOMETHING LIKE THAT I ALSO GOT IV STEROIDS TO HELP WITH NAUSEA. I ALSO GOT IV BENEDRYL. I SEE THE DOCTOR PRETTY MUCH EVERY DAY AND HE SAYS IT WILL GET BETTER. I CAN’T WAIT TILL THE DAY I CAN SAY YOU’RE RIGHT IT GOT BETTER BECAUSE RIGHT NOW I CAN ONLY SEE ABOUT 1/4 OF AN EYEBALL TO THE LIGHT. THE DOC ALSO SAY I MAY BE ABLE TO GET THE CATHETER OUT SOMETIME NEXT WEEK YEAHHHHH. WELL I CAN SOME WHAT EAT BUT MY TASTE BUDS ARE NOT BACK YET THE DOC SAYS MAYBE ANOTHER 2 WEEKS FOR THAT. I FIND THAT SMELLS BOTHER ME ALOT EVEN THE SMELL OF MY OWN HOUSE AND MY LITTLE DOG I CAN’T WAIT TILL THAT GOES AWAY. WELL THATS ABOUT ALL TO REPORT FOR NOW. HI AUNT BLANCHE–WISH ME LUCK.

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DAYS 12 & 13

Hi everyone,
it’s me trying to keep you posted. On day 12 i did get out of the hospital but really don’t think i was ready. When i got home i was so weak i could hardly walk around the house. I still have issues with eating. My stomach is so upset all the time. I always think i have to throw up i have gotten quite a habit of sticking my finger down my throat so i can throw up as bad as that may sound sometimes it works(my husband hates that) but you got to do what you got to do. i think i may have a bit of sinus or a touch of a cold because i have a lot of drainage and stuffiness. Anyhow day 13 i went to out patient clinic and i had to be taken up to 10th floor in a wheel chair. When i got there i saw the doctor and he says how i am feeling is normal for now but i should be getting better soon . My White blood count is good but my plateletts are still low but i did receive some IV fluids. My stomach issues are still there and they tell me to eat eat eat and drink drink drink)easier said then done but i have to force myself. i am still very tired and weak but getting a bit better. We will see what day 14 brings. will keep you posted.

DAY 11

WELL IT;S ME POSTING SO THAT TELLS YOU I MUST BE FEELING A LITTLE BETTER- I HAVE BEEN GETTING DAILY NEUPOGEN SHOTS TO HELP INCREASE MY BLOOD COUNTS. MY DOCTOR CAME TO SEE ME TODay as well as every day.HE SAYS I MAY BE ABLE TO GO HOME TOMORROW.BUT I WILL STILL Have to go to the clinic every day for a while. the deal now is wacthing to see if i get a temp. so far so good. i was able to keep my food down today but nausea abd dierreA WILL STILL BE an issue for WHILE. I CAN ONLY Eat in baby steps. i did get some mouth sores but nothing severe.the main thing was my esophagous burning and dirrea dirrea dirrea. so hopefully i am on the up hill trend. wish me luck. hi to aunt blanche and extended family.thanks for all the prays. and thanks FOR all the phone calls and well wishes from the family. it has helped alot. well keep you posted.
susan & fAMILY

Shaved my head


When my hair started to fall out I prevented a big mess by shaving my head. For men in SoCal a completely bald head is a fashion statement, so I never felt out of place. However, my sons and grandson decided to make sure I was OK with being bald: they went and shaved their heads too!



I quickly found out that a nice soft wool beret was the most comfortable way of keeping my head warm. Since it was winter I took to sleeping with it on. I also had a stylish Safari style straw hat that served well in sunny weather, but the beret was the best.



When my hair came back in it was the same wavy medium brown as before, with just enough gray at the temples to prove I don’t dye it. My old HS classmates are mostly all gray or bald and seem to be jealous. My family doesn’t go gray much. My Mom didn’t have much gray until she was 85.



My Sis had treatment for Hodgkin’s and lost her hair. It had been dark brown and very wavy. It came back black and quite curly.