Appreciating my Caregiver

Role reversal isn’t always comfortable, especially for a role that has taken on a life-saving significance. I’ve been my own caregiver ever since day one and I found they were cutting on my genitals*. Obviously, as well as I could then think, I could t…

State Champs!

The Pee Wee Warriors won the state championship in the Tier II A division!Gene is the star goalie in the lower right, with the white pads.Congratulations to the whole team, and many thanks for a lot of work to the coaches, managers, and parent voluntee…

SUSAN’S JOURNEY WITH MYELOMA 2007-03-13 14:58:00

HI EVERYONE,I WENT TO MY REGULAR ONCOLOGIST TODAY AND GOT A SHOT OF ARANESP–ITS WORKS THE SAME AS PROCRIT. i HAD SOME BAD BONE PAIN WITH THE PROCIRT SO THEY GAVE ARANESP THIS TIME. THE PROCRIT HAS DONE ITS JOB BECAUSE MY ANEMIA IS NOT AS BAD. SO MAYBE…

DAY 68

Hi Everyone,
It’s hard to believe it’s day 68–but here is. I am doing fairly okay. I did get my first injection of procrit about a week and a half ago–however i experienced some bone pain with it. Some of the nurses say it is normal and some of them say it is not so here i am again wondering which is true-however i indeed did get bone pain in my hips and lower part of my legs below the knee and my feet. I am just taking ibuprofen for the pain. But i have 2 more injections to go. Has anyone out there experienced bone pain with procrit? I have been feeling a bit unsteady on my feet and kinda like i have some sort of infection in my inner ear i think. But on the other hand i am growing some hair–not enough to feel comfortable without a hat yet but i am hoping that will be soon. My hair has come back sorta a salt & pepper look. WEll i see how long i can stand that. I am 48 but i don’t want to look 60 but maybe i will like it after all.
Well thats all to report for now. Will keep you posted. Susan

On schedule

The transplant schedule has stayed the same since last week, it all begins next Monday. The answer to the question "has the donor confirmed" was "yes," so I’m very happy about that. I’ve been trying to think what it must be like for a young man to do this. He must have a very strong sense of community, and a good relationship with his parents, since I would be about their age or more. It’s a fine

At home

The new schedule is to begin the transplant process the week of March 12th, so we get to spend this week and most of next at home. There are several fortunate things, that I had 3 matched donors to begin with, and I’m well enough that delaying a couple…

DAY 56

Hi Everyone,I waited to post untill i saw my oncologist today. ALl seems good my blood counts are all good but he say i am a little anemic. SO Monday i will start on procrit injections every 2 weeks for six weeks and then i will have my bone marrow bio…

Change of donor

First, I appreciate all the great comments. If it wasn’t clear, comments are welcome! They are a nice addition to a day full of pokes and prods and scans. But mostly I’m past all the testing and today was just a great sunny day in Seattle, and we took a memorial walk in Lincoln Park, in West Seattle. The "memorial" part was in tracing our steps of 2 years ago when I was so low on red blood cells