Rant

Damn these doctors!  You want the truth, and you ask for it, and they give you what they’ve got.  And you appreciate it, and then you don’t.  It’s not their fault.  They’re doing the best they can.  But really, what do they kno…

Because I Knew You

Last February, barely more than a year ago, Sue, Jessica,Valerie and I went to San Francisco for a weekend with our friends, Mark and Cindy, to see Wicked the Musical.  The story is that of two college-age girls coming of age, and explores ou…

Moving Fast…

I am amazed at how fast things are going on the transplant front. My sister and I went to Chicago last week for testing, getting ready to harvest her stem cells and getting the transplant process started. The tests were done last Wednesday. They cal…

Big Day is soon approaching!


A lot to report on. I had a doctor appointment today. All is well and everything is going in the correct direction. My transplant date is officially this Wednesday. Tomorrow I will be getting a large dose of melphalen. That should kill my bone marrow. That day is known as DAY -1. The following day, I get my stem cells that I harvested infused back into me. That is the DAY (or also known as Day 0). I am quite excited about this. If all goes well – recovery takes around twenty or so days. That means, I might be able to go home end of March for about 3 weeks. After that, I come back and repeat it all again.

This weekend Stan visited with the boys. It was absolutely wonderful! The weather was finally cooperating. It was simply beautiful outside. We went for long walks in the neighborhood and hang out together. The left for home today. It was a wonderful boost right before my transplant.

I am feeling good and ready to get this show on the road.

So wish me luck for both tomorrow and day after!

Hugs & Kisses,
Lina

Spike

An intermedulary rod is a bit more technical sounding, but spike is clearly more endearing. I’m referring to the piece of titanium in my left humerus which is keeping the elbow and shoulder connected. Most such connections are solid. Mine just happens to be a swivel joint with a lot of slop. The techy term is malunion. Being a south paw fixing this would be a dream come true.
The plan developed with a couple orthopedic oncologist’ at the Cleveland Clinic is to pull the spike out, fill the hole with cement, jam in a new spike, screw it all together and then paint some bone growth goop on the broken spot. All this to be followed by several months of chemo-free healing.

That brings me to the techy chart on the right and how to blast away a bunch of MM cells. The stable seesaw has been going on for over a year now (My MM has been hovering around 15 times normal values, a 75% reduction, ever since that rapid response over the first 4 cycles on Revlimid and Dex). On Monday after about a half an hour my team decided on weekly Velcade infusions. Just before getting up to leave I inquired as to why on earth someone should “tell your doctor if you have blood cell problems such as multiple myeloma, or leukemia” before taking Viagra? I have never seen an MM warning on any medication – ever.  He said because the manufacturer has not obtained FDA approval for myeloma use. There are a few published clinical observations claiming efficacy of  Sildenafil (Viagra) in myeloma patients. He turns to Lu and asks, “Should he try it?” An overexcited Lu beams, “You bet, four times a day!” He turns to me, “She is trying to get all the golden eggs in one go… by killing the goose.” The patient’s quality of life should be fine though.
Just call me Spike.

The Way We Were

When Sue and I were married, back in October of 1980, I was an undergraduate student at California State University Fresno.  My job, every Friday, Saturday and Sunday, and every holiday, from 3:30 to midnight, was as an “environmental enginee…

Mark, We are sorry to hear about your medical pro…

Mark,We are sorry to hear about your medical problems. We read your whole blog and you certainly have kept a positive (and humourous!) attitude throughout. Please keep that up and know that our thoughts and prayers will be with you every day.Love,Jun…

The Bomb Revisited

Dr. Birnbaum came by this afternoon with Dr. Whitlinger.  Dr. Birnbaum is the neurologist called in by Dr. Crooks.  Dr. Whitlinger is an oncologist who works with Dr. Hacket.  They delivered the bad news.  The spinal tap s…