An unexpected loss

That is what was troubling me last week, but I didn’t yet know it. I have lost yet another body part, my own bone marrow. At least this time I had the choice, which I didn’t have when that sexually abusive infant-male surgery was inflicted on me, nor when my tonsils and adenoids were cut out. Both cases were misguided attempts at better "health" which fortunately most doctors are beginning to

Good friends

Last week my friend Chuck came to stay with me, which was very much appreciated. It’s a good friend that will stay with you when you are sick. That worked out really well, so that Marilyn and Gene could go on spring break.This spring break brought back…

DAY 105 AND VERY GOOD NEWS!!!

Hi Everyone,WEll its day 105 and i have very good news to report –I AM IN REMISSION__YEA,YEA,YEA!!!!!!!. i had a bone marrow biopsy on Monday and a skeletal survey and lots of blood work done and i got the results today. All are normal. The bone marro…

Graft vs. Host

You may be wondering why I have to be here in Seattle for the first 100 days. It’s not that the recovery from the chemotherapy and radiation takes that long, but to watch and deal with graft vs. host disease (GVHD). After 100 days it’s expected that th…

Boring

We learned a fascinating bit of information last week. My blood type will be changing from my own original type, O+, to my donor’s type. Also, my blood DNA will be different than the rest of my body, and yes, it’s already been the basis of a CSI story,…

DAY 91

jUST A SHORT UPDATE. iT’S DAY NINETY ONE AND I AM FEELING PRETTY GOOD. I WENT TO MY ONCOLOGIST YESTERDAY FOR WHAT I THOUGHT WOULD BE A THIRD INJECTION FOR MY ANEMIA BUT I WAS TOLD BY THE NURSE I DID NOT NEED IT SO I AM VASTLY IMPROVING. i WILL GO ON AP…

Best ever

I had a phrase I said a lot when our son Gene was a baby, "best baby ever." In remembering that, I thought when I came to Seattle that I would try to be the "best patient ever." Positive messages are good, although not a panacea, or else I wouldn’t have gotten cancer to begin with, since my motto was always, "I don’t get sick."So it was without too much surprise to find out this week some

Appreciating my Caregiver

Role reversal isn’t always comfortable, especially for a role that has taken on a life-saving significance. I’ve been my own caregiver ever since day one and I found they were cutting on my genitals*. Obviously, as well as I could then think, I could t…

State Champs!

The Pee Wee Warriors won the state championship in the Tier II A division!Gene is the star goalie in the lower right, with the white pads.Congratulations to the whole team, and many thanks for a lot of work to the coaches, managers, and parent voluntee…