I keep in touch with just a couple people who I’ve…

I keep in touch with just a couple people who I’ve met because of this blog. From time to time, I talk with my family and friends about my experience. As it happened for me, my early diagnosis and aggressive treatment gave me quick relief from my sympt…

Craig Battling Strongly Future Brighter

Craig’s brother Jason sent this report on Thursday, april 9, 2009 (Ed. note).Hi,Craig went into the OR this morning at 11am (they had a few cancellation so they were able to schedule him in there this morning). Within an hour they had the temporary tr…

Munching Continues

The predators called in last month to munch away at those pesky little MM cells are smiling along with me from ear to ear. I learned a few hours ago that my Laughing Plasma Cell’s protein expression is a quarter of last months and about 6% of its peak 7 months ago.

If you’re bored here are some detials. We did a little curcumin experiment. During cycle 6 (February) I did not take any curcumin but continued other minor supplements. My protein expression was up slightly but considered stable. This past month, cycle 7, I resumed taking 8 grams of C3 Complex curcumin in the morning approximately 12 hours after taking Revlimid. My myeloma (monoclonal or M-Spike) protein expression went down over 75%. I love this note on my labs: “Serum Protein Expression: very small M-Spike visible on gel but too small to quantitate.” I’ll take too small to quantitate any day! Although the ratio of my light chain expression (Kappa/Lambda) is ten times lower than ‘normal’ it is the first time it has had a value in years. It usually just says
As for my sense of welling being, believe it or not it is more closely related to my hemoglobin and hematocrit than anything else. They are just a tad low now. Of course being told that my elbow isn’t attached to my shoulder is a bit bothersome. I find it rather unbelievable, but it does hurt like hell if I rotate my forearm just right. Life is Good!

Craig Lane’s Photo From Webshots

Left, Craig’s mother Jean Lane.The link below connects to a photo of Peoms Multiple Myeloma patient Craig Lane from Newfoundland, who the entire multiple myeloma community sends best wishes for a speedy recovery. Craig if there is anything further we …

Updates On Craig MM POEMS Patient

This from Jason,today Sunday, March 29, 2009; I have requested a photo of Craig, Frank Boyd Ed.Jason here. Just got back from a long day at the hospital. I stayed over last night. it was a pretty quiet night, but by 6am Craig was feeling some anxiety d…

Multiple Myeloma Patient, Richard Brown, a Top Curler

Canadian wheelchair curling championship begins Monday, March 23, 2009 in Lower Sackville.

Nova Scotia’s best wheelchair curlers will take on a strong field at the Canadian Wheelchair Curling Championship beginning Monday at the Lakeshore Curling Club in Lower Sackville.

One of these champion curlers, Richard Brown, underwent a stem cell transplant last February 2008 at the same time as I did. Richard and his lovely wife Sharron are delighted that Richard is going to get to play, and so am I.

Brown, 62, was an able-bodied curler at the club level, curling out of Mayflower for 17 years, before a spinal tumour led to surgery in late 2007.

His condition, multiple myeloma, is treatable, but incurable, and he now has titanium rods in his spine. However, extensive rehabilitation at the Nova Scotia Rehab Centre has allowed him to get around with the help of a walker and, more recently, canes.

This is his first year playing the wheelchair game.

“It’s a lot different because there’s no sweeping,” said Brown. “You have to be pretty accurate with your throwing, a lot more accurate than you are in the able-bodied game.”

Good luck Richard and Sharron and let us know how you are doing. We are all so proud of you.

Frank