Just a Thought

I friend recently told me about a sign he saw outside a Church:

‘Yesterday is the past,
Tomorrow is the future, and
Today is the present – a gift from God’

How many of us spend too much time worrying about something that we have done and wishing we could turn the clock back and do it differently, or spend hours planning what we are going to do tomorrow, or the next day, or next week – when we don’t really know what tomorrow is going to throw at us. This, quite often, gives us very little time to enjoy the present – the things that we actually have some control over.

So when you wake up in the morning say to yourself – “This is the first day of the rest of my life, I am going to make the most of it.” Enjoy the day, with all of it’s pleasures & opportunities, and take things slowly – make the most of the present – that gift from God.

Hospital

One day I had just had enough and decided I was ill and had to do something about it. (It tok me long enugh) My friends and family (mainly my wife) had been saying for a long time that I needed to go to the doctors.I regret to this day not listening to…

Family and Friends

Where would I be without the support of family and friends? From the very begining my family (especially my wife) and our friends have been there for me and equally importantly for my wife.Some friends who I expectd to be there disappeared but others c…

She’s no lightweight…

Stem cell collection goal was 10 million. In one day of collection (3 hours to be exact) we far exceeded the goal and collected 76.8 million. It’s amazing how God reveals his will.I won’t bore you with all of today’s details because that’s the only one…

Carl Sagan – A Glorious Dawn (Auto-tune)

Among my interests are pop culture, science and having fun with media. I ran across a video that combines all three and had to share. Melodysheep, a YouTuber, took some Carl Sagan videos and mashed them up with Stephen Hawking video. Some auto-tune eff…

End of September

Hi all. Well, here we are at the end of September, and what a wonderful month it’s been here in Cambridge. I always think it’s the best month of the year.On Monday I went for the first of my ‘childhood’ immunisations. This one was for Meningitis. No wo…

Sept. 29th

I settled in Seattle again. I spent a week and a half visiting family and friends. Begun my transplant process on Sept. 28th. I was given melphalan (the bomb chemo) and lots of IV fluids afterward. During the whole process that started at 9 am and last…

It’s collection time!

WBCs were through the roof today– up to 26,000 from 3,100 yesterday. It’s time for stem cell collection! CD 34 Results: Needed at least 10 and had 864! Nurse Carolyn said she holds the record!!We had a rough morning — momma woke up with a migraine…

POST #6 – Look Ma, No Hair

Today I finished Post #5 and Post #6 to my blog. 

What a difference a day makes. 24 Little Hours. My scalp had been sensitive / sore / tingling for days.. and bingo, the hair started to go. I expected it of course, and Thursday morning I’m brushing my hair..it just wouldn’t stop coming out as I repeatedly cleaned my hairbrush. I was sort of chuckling at the whole thing. Running my fingers through my hair..and then lightly holding on at the end..and about 50 strands would come out in between my thumb and index finger. Long strands with that little root blob at the end.  It was like a trick. “Hey, look what I can do!”

It took me back to my childhood when I’d play with a doll that had bad hair, or perhaps was a cheap doll..the hair would just come out when brushed. Being an obsessively neat player-with-dolls..they always had to look nice…so I had to be gentle with such dolls. But this was wild—it was my hair!

My scalp didn’t hurt any more or any less as my hair came out. My scalp just plain hurt, and lying on a pillow at night wasn’t fun either, plus, I’d wake up to a layer of hair across the pillow case. How delightful. I took a few pics for posterity—really bad news. Not even blog-worthy. All I could think of was that I looked kind of like an Amish boy (though an aging, yet girly Amish boy), with the blunt cut hair, missing on top. But my Amish boy hair was not orderly. My hair came out in hunks. Uneven hunks. It was not a becoming “do” on moi.

Now I don’t think losing one’s hair is really so bad at all, in  the grand scheme of things, as most natural hair loss occurs evenly, and gradually. Not overnight and  “KAZAM!” People may have “thinning hair” or for men, usually on top, it may fade over time. (As an aside, I think bald / balding men are every bit as sexy as ones with hair.)

What expedited this process was my final hair-washing..and I ended up literally brushing most of my hair out of my head. Talk about a hairball. We’re talking Guinness World Record level hairball.
On top of this, I had a two-day migraine, unrelated to my cancer medication. Just another thing that I get now and then..so, that wasn’t fun—coupled with my state of hairballage.

So, I sported my girly Amish boy look for about three days, weathered a migraine and donned a little turban type cap to make my head more comfortable and to also serve as a hair-catcher (sigh). I couldn’t take it any longer. I was shedding like a dog. Hair everywhere. It was nuts. So, today, Sunday September 27, I spent two hours removing what was left. I wanted all it GONE. What a job. I had no idea what it would take to shave one’s head. Holy moly.

I didn’t do this to make some statement, or pound my chest that I am woman with cancer and I’m shaving my head. It was just something that felt right, and I was determined. No tears (though I did have a tear during the first day of Amish boy hair hunk-outs…ugh..), I’m pretty satisfied with my new “do” or “un-do” as it is.  And WOW!.. Think of the dollars to be saved on hair “product”, hair cuts and hair lightening processes. (At least for a while anyway.) I have my new wig at home and it can wait there for me when I return. For now..I have scarves and such which are fine. And there’s always the au naturel look — I may even try that as well. So, here I be in a cell phone pic, un-retouched as they say:

Monday September 28 I start back at Hershey and have an I.V. of a medication called Velcade for a few hours. It’s another chemo that may give me a side effect of numbness in fingertips/toes.. possibly some nausea, but that’s TBA. We’ll see. It’s a Monday / Thursday regimen for the next two weeks.

At least today I feel great.

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The Devil and Daniel Johnston

Many moons ago I had a radio show while at university. It was a great Thursday 8:00-10:00pm slot and I used this time to explore the best in alternative music. Well, at least what I considered to be the best. During this time I picked up a tape called …