Barely Functioning And OFF Til the 25th May

It has been rough around here for me, I am not good for being upright or walking around, meaning I am not getting much done. I feel OK, just some nausea and I am definitely ENJOYING a loss of appetite, as I have lost around eight pounds already. I went…

Hi, I just stumbled across your blog and as I was …

Hi, I just stumbled across your blog and as I was reading back aways, I see you mention HUMC
and a Dr. S. My hubby is a 46 yr. old MM patient
of a Dr. S. in Hackensack. We live just 9 miles from there. Tim was dx’ed in ’07. I blog about MM and other spoutings at www.timswifesblog.blogspot.com. Just figured I’d stop in and say “HI” to another Jersey boy. Tim just got over a major back issue too. Had the PET scan and all that. You know you’re in trouble when percocet, muscle relaxers, and advil taken all at once don’t touch the pain and you still can’t walk. Yikes!
Stay well! Denise

Back in the land of the living

I am back in the land of the living. Last week was not fun at all. It was like living through an episode of House. All of a sudden my temperature and CRP skyrocketed. Without understanding the root cause, the plan was to drown me with an antibiotic cocktail and hope that something in that mix worked. When person’s WBC is real low, as mine was at 0.01, they don’t take any chances here. No time to figure out “Why?” or rather do that as step one. They bring out the top guns right away. Well, I am happy to report that I am doing much, much better. I would say back to my normal self. So much for transplant two being as easy as the first one. Oh well. I am just glad things are on the mend.

Meanwhile, during my worse day last week, I got an amazing surprise. A fellow MM blogger who was visiting Little Rock for his three month checkup stopped by 7C to say Hi. Well – so much for Murphy’s Law. On the day that I felt the worse, this happens. I am so sorry I did not get a chance to meet in person. However, I am so grateful that he stopped by and left a beautiful card. I am sure that played into my speedy recovery process. Thank you so very much!!!

Tomorrow is my dr. appointment and we will see where we go from there.

Anyhow, that is about all for now. Happy Mother’s Day and for those with European background, Happy Victory Day!

Love,
Lina

Feeling OK and HOPEFUL After 1st Round w/ Cytoxan.

I headed to the clinic early this morning and got there by 10, however, I wasn’t headed back home until almost 4. My platelet count was just above the cut-off for getting a bag of them, but I pointed out to Fatima, one of my favorite nurses, that I had…

Olive Redux

It’s been a few weeks since I posted, mostly because I have simply been very tired, and not feeling well. Some of the anti-rejection drugs have played havoc with my GI system. This left me tired, dehydrated, and wondering why I did this in the first …

Ugh. PN is the worst, and I can testify to its pe…

Ugh. PN is the worst, and I can testify to its permanence. After having had thal, rev and velcade, it’s become like a bad tenant who can’t be evicted. Have you tried any of the supplements that are supposed to help?

I think I would go to an open biopsy of the area f…

I think I would go to an open biopsy of the area first… if something else is going on, the cover-up meds will only mask it for awhile. That’s a scary step, but then you really know what you are dealing with… prayers going out to you tonight.

Wednesday Morning and I Have Energy!!

I’m finishing up a dialysis treatment as I type this (pound the keyboard: love the line from George Clooney movie, “Are you MAD at your computer?”). Since Sunday I have had some light drains (not enough/ not normal) and a few fibrins (stringy protein t…