So, I met with an orthopedic surgeon named Dr. T to go over the next steps in treating/resolving my flu shot induced shoulder pain. During my appointment, he reviewed the MRI films and the radiology report. Overall, the MRI showed inflammation, bursitis, partial bursal tears, a collection of fluid (probably the vaccine!), and tendinitis. Not, “terrible things” as Dr. T put it and nothing warranting surgery, which already knew. However, he was concerned when he saw the state of my bone. He said it looked like I had been hit with a hammer.
He asked me if I had been having fevers or night sweats because he was concerned about infection of the bone. I told him I’ve had fevers for 4 years and had smoldering myeloma. He asked me when I was seeing my doctor. I said I actually just saw him and he replied, “Oh so he saw these images?” I said no and that I had told Dr. R about my shoulder pain but didn’t show him the MRI. I mean…why would I?! Dr. T said, “Your doctor really needs to see this.”
I totally freaked. Inside, of course. Well, partially outside. Not unusual for me these days.
In my head thinking rationally I knew that myeloma does not cause edema/contusion of the bone (right??) but he kept going on about how the bone was abnormal and Dr. R needed to look at the MRI.
Dr. T wondered outloud, “Is this myeloma? Is this infection? Is this where he jammed in the needle? Not really sure.”
He brought in another named Dr. M who thinks I might have nerve damage and/or parsonage turner syndrome caused by the flu shot. Dr. M wants me to have an EMG to check for nerve damage. More needles! Basically, bottom line: nerve damage or not, there is nothing these doctors can do for me. I need to provide my shoulder time / physical therapy and the pain/loss of motion “may” resolve within 1 year or up to 2-3 years. Or, I could have permanent nerve damage if it’s parsonage turner syndrome. Sweet.
As for my bone? Eh…not really sure what to do about that. Going to see if I can drop off the MRI at DFCI for Dr. R to review. And the beat goes on… :)