There is not one multiple myeloma specialist that I know of that does not quote their current life expectancy in the range of 7 to 15 years. So how can this still be the case??
There is a little light even in the graph of 4 year survival. It is not the last three years but the three year prior to that where life expectancy improved by 13.2%. But this is not the quantum leaps that we have expected to see given the constant 7 to 15 year references.
One thing I have found is that the best myeloma centers have a far better 1 year survival rate than the average center which provides data to the National Cancer Institute. Some of the best centers report 1 year relative survival of between the mid to high 90%’s. And as I had reported before, the survival rate improves with each year that your live. You can see that analysis if you just CLICK HERE. So, I would hope and pray that the 4 year survival for patients who were diagnosed in 2009 will also show a 19% improvement over the recent 4 year survival rate. Maybe, the entire health care system is just slow in digesting the newest and most effective myeloma treatments, and as a result the ones that are receiving the best care, or second opinions from a myeloma expert are just too small a component of the total myeloma patient population to make a dent in the numbers. This will not change until these best methods spread through osmosis throughout the health care system. What I don’t understand is that Dr. Ravi Vij, Dr. Mazumder, and Dr. Hofmeister will provide a second opinion for $250 or less on the web site https://2nd.md/disease/multiplemyeloma and it is my understanding that this is not being utilized much if any by the myeloma patient community. Like I often say, if you do not have a myeloma speicallist in your local area, SAVE YOURSELF, and get a second opinion from one any way you can.
The real LIGHT from this data is that the 1 year survival rate has FINALLY made a large one year leap, and this bodes well for next years National Cancer Institutes one and two year myeloma survival data, and for all survival data in future years. At least I hope and pray for us all that it does, and that this years 19% improvement is not a data anomaly.
Best Regards and may God Bless your myeloma journey/ Gary Petersen firstname.lastname@example.org
P.S. – I did a followup to this post and you can read it if you CLICK HERE.For more information on multiple myeloma go to the web site www.myelomasurvival.com or you can follow me on twitter at: https://twitter.com/grpetersen1