Living with multiple myeloma: Pomalyst chemo cycle 1 week 2

Living with multiple myeloma: Week 2 Pomalyst chemo treatmentFebruary 2015: UBC campus

On Monday I began my second week of Pomalyst chemo + dexamethasone for my multiple myeloma and anemia. For 21 days out of every 30 I take a chemo pill (4mg) and every 7 days I take 10 dexamethasone pills (40mg in total). Dexamethasone is an oral steroid.

The first few days last week were a bit challenging with fatigue, tummy issues, and consistent hiccups (side effect of dex), but I think my body was just adjusting to this new treatment. Right now I don’t have any significant side effects beyond occasional fatigue and weight gain around my face and waist. I weighted 163 pounds January 28th and weighted 169 pounds yesterday.

As a cancer patient, living with a treatable, but incurable rare disease, an ongoing issue for me is when to share that I have multiple myeloma. My concern is how the news will be treated. I’ve lost friends after I’ve told them about my cancer. So I’m always worried that I will lose the opportunity to become friends with someone or that a budding friendship will fall apart. Truth be told, you can never have enough friends.

Lady Grey TeaLady Grey Tea

This contrast with how much I love Lady Grey Tea and how willing I am to share this passion with whomever will listen. I’m like a Lady Grey ambassador – “It will change your life for the better”. What I need to become is more confident talking 1-1 about my blood cancer and my experiences with chemo. I just don’t know who may have a friend or family member touched by cancer, that would welcome the opportunity to have a conversation with me.

I’m hopeful that I will respond well to treatment. I will have a blood test next week. I love photography and use self-portraits to help improve my health and well-being. Taking pictures brings me happiness.

To recap: I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. From February 9th 2015, I am on Pomalyst and dexamethasone chemo treatment (Pom/dex).

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