…my new best friend Oramorph. He really is something special and provides me with relief every 2-4 hours if I need it. One of the local Macmillan nurses kindly called me yesterday and reassured me, that I was doing OK, I was concerned that I was using Oramorph too often and that I might be becoming addicted. Yesterday I went out without him and I certainly missed him after a few hours, next time I will remember to bring him along.
Talking about yesterday, we had a good meeting with Kate and Martin. It was all quite emotional as mummy and Kate shared stories and photos of their late fathers. I must however correct a few points from yesterday’s blog. My grandfather was in fact, going to be Kate’s brothers godfather if he had lived, and my grandmother wasn’t pregnant at Kate’s fathers wedding, not that those small details will make any difference to you but I do like to get my facts straight.
Whilst at their very grand home they showed us around their beautifully manicured gardens and best of all I got to stroke a couple of their Alpaca’s. It was lovely to meet the couple and we look forward to seeing them again sometime in June.
Today I am going to rest, Oramorph has the tendency to make me feel very sleepy. Then tonight we are getting together for a party committee meeting. I am very grateful to all the people who are willing to come along and help organise my Summer Party. It is amazing how much needs sorting out and sadly I don’t have the energy to do it all on my own.
Tomorrow is yet another hospital visit and I hope to find out when I can start back on treatment. I really want to get on with it so I can then get my stem cell harvesting out of the way and start on my road to recovery. The longer it takes the closer it is coming to my party and more worrying, my six months full pay running out. It does concern me as I really can’t afford to go on half pay and need to get back to work although I know at the moment there is no way I could manage this. Oh well I will find out more tomorrow and as long as they don’t try to take my new best friend away I will just have to lay back and take what’s coming!
Enjoy your week.
Deborah x
