So we have about 44 days till June 1st and reaching our 3-year mark of walking EVERY DAY. I don’t see any reason to stop, so it’ll be onwards to year 4. Right now sunrise is 6:29 am so we are getting out earlier and probably that will keep going. Walking now around 6:05 am.
But with this last cycle of Velcade it seems I’ve had a lot of leg and feet issues. I know my leg muscles often feel kinda spongey but I think that’s the dex as this has been kinda ongoing for a long time. My leg muscles never seem to feel stronger as a result of walking but if I didn’t walk I’d hate to think how it would be. Hence ,the need to keep walking.
But over the last month,there’s been more achiness in my legs especially at night plus tingling in my feet and some burning sensation. I’ve never had neuropathy so I’m not sure if this is it. Plus it seems restless leg syndrome fits how my legs often feel. Since to complicate matters,I’ve had foot issues with bone spurs and a nerve that causes some numbness in my big toe joint. I saw a podiatrist last year and she gave me a cortisone shot in that area and it helped a tiny bit but not much. She recommended a surgery which I’m not doing at least not.
So, is this neuropathy?? I’m going to go get some B-complex vitamins plus alpha lipic? something.Pat Killingsworth recommended those two things. Are there any other thoughts. ? I’m going to emessage my doctor and at least let him know.
My first labs came in and all my WBC, RBC platelets etc look terrific so I’m happy about that. I’m waiting for the SPEP and light chains to come in probably tomorrow. We had lowered my dex to 16 mg so hopefully, that didn’t impact anything.
So any ideas if this is the beginning of neuropathy? I’m due to start Velcade cycle 5 in 2 weeks. that gives me 2 weeks to see if it gets better, or worse, or stays the same.
