And the Orange County Marathon in California last Sunday, my 95th since diagnosis, Whooee – still on track for 100 marathons this year.
This was also the third weekly Darzalex infusion at our local hospital. Arriving at the infusion center at 7:45 am, I left at 2:45 pm, total seven hours. That includes a blood draw for a CBC and metabolic panel, a visit with the doctor, the pre-medications (Tylenol, Benadryl, and prednisone), and finally the Darzalex itself.
No issues. In particular, I have never had any kind of infusion reaction from Darzalex. Apparently that makes me a lucky myelomiac, because the manufacturer’s Dosage and Administration instructions suggest that about half of us may have a reaction, most of those occurring in the very first infusion. A reaction doesn’t necessarily stop the infusion, but would slow it. A myelomiac may wish to discuss this with his/her doctor, as I am NOT a doctor, just a patient.
In three more weeks (and three more infusions) I’ll make the trip to Mayo Clinic and get updated myeloma test results and an eagerly-anticipated visit with my doctor WG. Meanwhile, we hope that the spectacular 39% decrease we saw last week from the combination of Pomalyst, Darzalex, and DEX will be the prototype for these upcoming test results and other future results.
There is hope after diagnosis!