Hello everyone, and thank you for reading and following my crazy adventures. I have a Dr appointment 4.18.17, so I will update you with all my recent stats tomorrow, and tell you about my crashed immune system and getting Zarxio for 3 days in a row this past week. Thanks for checking in, and see you tomorrow with numbers!
4.18.17 UPDATE!! NEW NEWS!!
Hello again everyone- been a busy last couple of days. As I’ve written before, I often think I won’t have much to say from post to post, but sheesh am I wrong about that. Seems like so much happens in my MyelomaVille life in just 10 days, between my “On The 7’s” posts. Here’s what’s been going on:
My WBC (White Blood Count) crashed to 1.7 (Normal range = 4 -11) on April 10. Most likely a result of my 3 week standard course of Pomalyst. Unfortunately, this pill form chemo/immunotherapy wreaks havoc on my fragile immune system, so my Dr put me on 3 shots of Neupogen/Zarxio last week. Yippee, as I do just fine on these, as I am so short on WBCs (White Blood Cells), I don’t have the “crowding” and painful bone pain many report when on “granulocyte colony-stimulating factor (G-CSF), filgrastim”. Fortunately, this brought my WBCs up to a whopping 2.0 and then 2.8 (Normal range = 4 -11), from yesterday’s labs. My Dr was very concerned that my ANC (Neutrophils) had dipped to Neutropenic status, (I think she said .99, but I didn’t see that on my lab report), so that was another reason she offered me the Zarxio shots. I am now a “whopping” 1.28 (Normal range 1.80-7.70). When I say “whopping”, I am of course being sarcastic, as I am sadly very Immune Compromised, and try to live as “Bubble Girl” when I can lol. So that’s the “Bad News”.
READY FOR THE GOOD NEWS?!
THANK YOU Darzalex, with Pomalyst, and Dexamethasone, you are pummeling Myeloma!
and now… wow, just wow,
Not even on the scoreboard ^
and making me feel ok once a week!
When I view and discuss my Labs, reality hits me. When I consult with my Doctors and Chemo-Pharmacists, and they are very concerned and serious, reality does hit me. When the term “high risk” references my status, reality hits me.When my myeloma morphs, mutates and outsmarts my treatments, and my cancer stats escalate, reality does hit me and hits me hard, and I get scared. But today, I am encouraged and have new hope for additional successful months with Darza, Pom and Dex pummeling this monster within me. Myeloma patients just hope and pray our treatments continue successfully, buying precious time…, hoping the amazing medical scientists and researchers continue to develop additional meds to treat this stealthy, sneaky cancer, that will always outsmart and return with a vengeance. It’s just a matter of time…
It’s a strange and scary feeling, that my life is entirely in the hands of others, that my life depends on highly complex scientific molecular and cellular knowledge that I barely understand. It’s overwhelming that my life entirely depends on targeted chemicals coursing through my veins, joined by pills cunningly circulating in my blood stream, their mission to annihilate cancer cells, and to keep me alive. Imagine wondering if this internal chemical warfare will last months, or a month. Imagine wondering, always wondering, treatment to treatment, blood test to blood test, if my personal “Team Pummel Myeloma” can outsmart and out chemical myeloma. Imagine living day to day, wondering… wondering when the myeloma roller coaster will jerk me in that “other direction”.
Yet, I remain hopeful always, as I Want To Live… for a long time!
live well, and make a difference somewhere, somehow, with someone or something
as often as you can