I took blood tests last Thursday, Nov 2 for today’s monthly status check. Surprise, no surprise, my WBCs are almost Neutropenic again, as I completed my 21 days of Pomalyst that day. I’ll find out today at my monthly oncology appointment, if I need to start a few days of Neupogen/Zarxio shots. No problem with that anymore. I actually look forward to the immune system boost, and I’m now a pro at self injection lol. Grab that tummy chub, and boom, done!
One of my fave girlfriends way back in Elem, Jr High.
Linda and I were “ponypals” back then.
2 of my fave twinsie girlfriends from High School-
Such wonderful memories.
I would post more, but not sure if everyone
wants to be on international social media :))
Beach weather was awesome, I would have loved to stay the day.
But when I woke up, I could feel my body betraying me :((
What a way to live, right… wondering if my triplet cocktail of Darzalex, Pomalyst, Dex steroids is still pummeling myeloma. Or if myeloma is stealthily mutating, and outsmarting these amazing meds, which have been saving my life since March of this year… we’ll see…
Yes, I am still battling this “little bug” that invaded me, but so far, nothing too dramatic. For someone with a “normal immune system”, they’d probably take a few Tyelenol, extra Vitamin C, Claritin, etc, and go on to work and “normal life”. Well, I’m doing that to an extent, but taking note not to do too much, so as not to make things worse. I comment about this, as I am really proud my weak immune system is battling, and I’m not the “typical myeloma patient” who winds up with a horrible respiratory infection, pneumonia, and then in ER.
And now for my monthly myeloma stats. Pretty proud of these too!
Yes, it’s November 2017, and 8 years ago this month, Doctors were letting me know my blood tests were showing “something very unusual, that needed further testing”, that something was really “not right” with me. Bleeding out “everywhere”, super Anemic, super low WBCs, “unusual Protein levels”, extreme Fatigue, Breathlessness, strange Aches and Pains, getting Sick often, a few Bruises here and there, and fuzzy mentally…
I just thought my life was too busy, too much going on… NEVER IN MY WILDEST THOUGHTS, did I think I was REALLY SERIOUSLY SICK…
live well, and make a difference somewhere, somehow, with someone or something
as often as you can!