Just love these numbers today!
Speaking of numbers… I won’t find out my treatment status numbers until the end of this month. This next week is my chemo break week (yippee!), so I’ll take labs mid week, then get back to Kyprolis infusions the last Monday and Tuesday of June. I meet with my Dr on Wednesday June 29 to consult. Will be interesting to see what myeloma has done this month, with my on-again, off-again Kyprolis/Dex schedule… Each month I get through a chemo cycle, I feel like I’ve completed a marathon. But a marathon that never ends. Cancer that never ends. Chemo that never ends.
I am constantly processing and analyzing how I am going to treat this monster for the rest of my life. Slow and steady, or more aggressive? Stay the course, or switch up meds as my numbers creep up?
My life has dwindled down so much, and I have so few days where I feel like doing much at all. I’m just so sick of feeling sick all the time. Such a strange way to live, considering how healthy, busy and full my life was pre-myeloma. Truly I am still mystified by my situation and abrupt changes physically, psychologically and professionally. Sorry I mention that all the time. But I go around shaking my head in disbelief so many moments, every day.
I take my Dex steroids on Mon and Tues and head to the chemo lab for my Kyprolis infusions. So ironic, that on cancer treatment days, I actually feel the best, since I am propped up on steroids. Crazy stuff. I sometimes even feel a bit “normal”. That’s when I really question my circumstances and wonder what in the world happened to me. But then, I am fully reminded of “what happened to me” on my lovely crash days, such as today, when side effects abound. But, it is what it is, and my motto has always been, “you can’t control the things you can’t control, so analyze it, process it, examine it… and move forward… always forward”…
Even when I see my diagnosis in writing, which is always…
It’s still so hard to process.. 6.5 years later…
Still so hard to process..
I may not be able to do much away from my home, but I still have “purpose” in life. Purpose in saving other lives. Purpose in nurturing and caring for little lives that come my way.
Here’s my most recent adoption project:
Here’s a few interesting myeloma links for you-
An ocean animal may save our lives! Sea Squirt (Aplidin) Clinical Trial Results Are Promising for Treating Relapsed/Refractory Myeloma
So I’m thinking, if I do need to switch off of Kyprolis to something else… maybe to Pom? Pomalidomide plus low-dose dex should be a standard of care for patients with relapsed/refractory myeloma
Check out these wonderful, helpful, informative myeloma links.
Whether you are “new” to myeloma, or a “warrior” with “battle scars” like me, or a family member, friend of a patient, a colleague, etc, these websites offer infinite articles of current, amazingly helpful myeloma information:
Thank you Revlimid for saving my life for 5.5 years! Jan 2010 – Oct 2015
Thank you Kyprolis for saving my life since Nov 2015 to now 6.16.16!
And of course, I have to mention and thank my best friend and worst enemy Dexamethasone!
live well, and make a difference somewhere, somehow, with someone or something
as often as you can!