Day four of second round of DT-PACE

I am feeling pretty exhausted and constantly nauseous but despite this all is going as well as could be expected. We are staying in the Cotton Rooms again and Colin was given a bit of a break as Kate came and acted as my carer on Friday night accompanying me to Ambulatory care on Saturday. It must have been pretty boring for her as I spent much of my time sleeping as the nurses attached various different drugs to my Picc line. Colin managed to get the lawns mowed whilst the weather was good.

I have been spoilt once again by good wishes and thoughtful gifts so Thank You so much for all of these. Although I am mostly surviving on Ensure drinks at the moment I have lots of goodies to look forward to.

The plan is to be back home again on Monday once my 24 hr chemo has finished and been detached from me. I will then return to the Cotton Rooms a few days later as my blood levels start to drop and I become neutropenic. This is the time that I am at my most vulnerable and must avoid any risk of infection so will avoid visitors. Hopefully this time round I won’t get an infection and be admitted to the hospital but being here I will feel more confident. Last time around I thought that my consultant was being a little over cautious but I soon found out how ill I could quickly become so I won’t be taking any chances. If a I develop a temperature before I get back here I need to get to an A&E department within 40 mins so I will need to attend my more local hospital which unfortunately I have little faith in. So probably around the 7th June, I will be booked into the a Cotton Rooms once again, for quite a few days and will be monitored closely in Ambulatory Care. Once my blood results have started to return to normal I will then be able to go back home. It will then be 2-3 weeks before returning to hospital for my Stem Cell transplant. I am trying not to think about this too much at the moment as the thought is really too scary to contemplate but it has to be done.

Emotionally I am trying to remain as strong and positive as I can as I know the importance of this on my physical healing but I can’t pretend it is easy. However with your support I am managing and looking forward to a holiday sometime in the future.

Thank you all once again for your positive wishes and thoughtful gifts.

Deborah xxx

Filed under: emotional wellbeing, general chit chat, Myeloma, NHS