Well, I’ve missed writing on day 100 – apparently D-Day in Myeloma terms. I think it can only be a good thing that I’ve been too busy to even think about what day I’m on, let alone to write my blog.
But today has been a good day, and most definitely deserves a post….one of my sisters called me today with the great news that she is a MATCH! Hurrah!! So what does that mean in laymans terms. well, basically, if I don’t get a long remission from my current transplant, or if I stop being eligible for another normal transplant when I do relapse one day, I may need to consider a sibling transplant. A sibling transplant has the ‘potential’ for providing a very lengthy remission (some say it can be as good as a cure!) but the reason that it isn’t used early on, is that there is a 25-30% chance of the transplant failing – and me dying. Not good. So it isn’t something we’d choose lightly, but it is great news to know that if I am desperate, I won’t have to wait to see if we can find a match.
There is a 1 in 6 chance of siblings being a match, and given that there are 6 of us in my family, I was hoping to have at least one match. One of my sisters has already been told she isn’t a match and we were waiting to do the others but this sister who is a match, had registered with Anthony Nolan years ago and so we finally asked the question! And got the answer we wanted! Such great news! And I also found out today that one of my other sisters has also been tested quietly and in the background. When my first sister was given the news that she wasn’t a match, my other one wanted to try to cheer me up. She wasn’t going to tell me if she wasn’t a match, but had hoped that if she was, it would cheer me up. So, we are still waiting for the news on this one, and obviously more than one match would be fantastic, but I am chuffed to pieces to just have one – I feel very lucky to have this option ahead of me….even if I won’t be lucky to need it!!
Anyway, what else. Not much. Exhausted after a manically busy week. We did make it to Warwick Castle on Friday, went to see Nick’s nan on Saturday, did the Hellfire caves and saw friends on Sunday and did Legoland on Monday…..I’d expected to collapse today but somehow ended up planning my tabletop and craft fair all day!! It is coming up on Sunday and to be honest if we hadn’t done a raffle, it would all be under control!! But we have and I can’t complain as it is making us lots of lovely money for MMUK. If anyone is interested in buying tickets, feel free to visit www.justgiving.com/DebFraserGascoyne
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But tomorrow is for sleeping!! (Amongst a few sale jobs!!)