First, Alice Cooper never called me so I’m guessing those biopsies were negative.
Second, the Velcade is definitely causing the hair loss. I stopped it for three weeks and the hair started thickening again and I felt better. However, for reasons I will discuss in an upcoming blog, I’m going to keep with the Velcade, I think…lots to report on statistics and what not, not all of it great.
But, having said that, I’m still in complete remission as of my labs today — everything looks good.
And so rather than kvetch, I wanted to let you know of my upcoming participation on another panel put together by my friends at Curetalk. My other panelists and I will be answering questions about how we deal with therapy, side effects, and our condition. I’ve seen some of the questions that have been submitted and it should be a very, very interesting discussion.
You need to register to participate and I think it’s limited to 50 callers. You can register at the link below, and a description of the panel follows.
I hope some of you can join us!