Crazy Times, Crazy Lab Results, Crazy Stress, Crazy Myeloma, but GOOD News

by

Hellooooooo 9.9.19

It’s crazy Treatment Day, with a side of  Roids!
Yes, it’s Monday Medical Madness Day with 40mg Dexamethasone Steroids, so I’m flying high and wanting to have fun, in all this crazy illness insanity between me and my hubby!

I ‘ll detail my current Myeloma status labs below, after my Velcade appointment. I do screenshots from the Kaiser website, then download, then upload, and hope to find time with all my hubby’s “demands” LOL!!! It’s like I have a 180 pound Toddler, who wants to follow me everywhere and try to talk about things, but it’s mostly “nonsense” coming out of his mouth :(( But I can read his mind after 39 years, so I figure out what he’s trying to convey. So so tragic. Losing mental functionality is so awful… but all this stupid cancer stuff is too. I just can’t wrap my head around both our terminal, incurable illnesses. But I’m doing better now, not having the intense meltdowns I did a few months ago. Acceptance and moving forward daily, is key to survival…

I used to love to write my blogs late a night, when the house was quiet, and he was asleep in his chair, or in bed, the doggies and all the critters sleeping, while I had the windows open, listening to the summer breeze, crickets and the hoot owls hooting… so peaceful, so serene…

NOW… omg, I NEVER get any time to myself… but that’s another story perhaps for a different post.

So coming later later later....
Screenshots below :))

IGA
M Protein
Beta2 Microglobulin
CBC stats
Organ function stats

And you know what… the results are “shockingly” ok considering all the STRESSSSSSS, super random eating I do, and all the non stop, I never get to rest, never have time to be a “cancer patient” lifestyle I have here. Except on days 2, 3, 4 after Velcade, Dex, Cytoxan, I do feel kinda “gross”, so I do sometimes, just have to sit and feel awful…. BUT NOT TODAY, THANK YOU 40mg DexaMETHasone :))

HERE THEY ARE!!!

M Protein still Abnormal
But down points every month
Was over 1.5 earlier this year
And was 4.5 at Diagnosis, Dec 2009
Right in the middle!
So grateful my Kidney function is still good! 

Can’t believe my IGA is still coming down
even after being on this triplet of
40mg Dex, Velcade, 800mg Cytoxan for almost a year now!
But I’ll take the results, 
even though they are outside of the normal range
Not bad, and hoping it stays in the Normal range,
although at the high end

Thank you for checking in, and caring about my roller coaster life.

Hoping you are doing well if you are a myeloma buddy, and your treatments are effective, healing, and manageable.
If you’re friends, family or happily not touched by all this medical insanity, I hope you are having a wonderful end of your summer, and all is good with you and yours!

https://myelomabeacon.org/news/2019/08/29/tnb-383b-for-multiple-myeloma/
There cur­rently are more than 300 clin­i­cal trials ongoing around the world that are investigating treat­ments for multiple myeloma and looking for patient par­tic­i­pants. Most of these trials are exploring new myeloma ther­a­pies that have not yet been approved for use outside of clin­i­cal trials, and many of these “investigational” ther­a­pies, as they often are called, have the poten­tial to be extremely effective.