Chemo’s coming to gobble you up again!!
So we picked up some of my prescriptions, after my treatment planning appointment Nov 18… I couldn’t help but laugh when I tried to organize all these meds in my “pharmacy drawer”. There’s a lot of meds here again! It’s 2010 all over again… but actually I am grateful for the deja vu medication treatment routine, as I now know how to manage the side effects from each one. I take some in the morning and some at night. Some with certain types of foods. Some without food.
Can you guess which I take WHEN?
This Rx comes from the Kaiser “specialty pharmacy” in San Francisco
They are so wonderful with personal calls, and sending it FedEx next day!
|Hello again my friend Revlimid!
We’ll be friends for 3 weeks on, 1 week off.
Cost is unbelievable! I just received my new Rx!
(and the 2013 price is even higher than my 2010-2012 (of course!)
Ready for this… $9,283.57 per 21 day cycle! OMG!!!
Interesting article here regarding cost and survival
|The magic hot pink pill to prevent allergic reactions and hives from Revlimid
Back in 2010 when they tried higher doses with me I had huge allergic blotches and rashes…
I didn’t realize how serious it was at the time
|Good ol Aspirin to prevent blood clots
and deep vein Thrombosis from Revlimid
|ROID RAGE right here !
I have a love/hate relationship with you Dex!
|Omerprazole to prevent ulcers, acid reflux, etc
These I have to remember to take longer, as the Dex roids have been
wreaking havoc on my GI system
|Antiprotozoal to prevent Pneumonia and other cooties!
It has the consistency and appearance of yellow preschool paint, with a Citrus taste
Quite pricey at over $2500 per Rx
|Antiviral to prevent Shingles
I forget if I did this pre and post stem cell transplant in 2010
And I think I will add B-12 and a daily vitamin to this chemo cocktail as I keep getting sick!!! ggggggrrrrrrrrrrrrrrrr
How do I feel overall? Kinda spacey, mentally worn down and a bit sad. Seems like I am sick every week now. (Home sick again now! ugh!) Most of the time, I feel dehydrated, dizzy, nauseated, weak, tired, GI yucky stuff and nasal stuff etc!!!! Just go away Myeloma!
I really thought I would be “different” and get remission for a long long long time… instead, Myeloma came back fast and from all the studies I read… my clock is ticking faster than I really allowed myself to absorb before. Am I lucky if I have 10 years from diagnosis?
2009 + 10 = 2019
Tick… Tick… Tick… Tock