feeling good at day 220

Hi to all,well its been a long time since i posted and i just wanted to give you all an update–its now day 220 if i calculated right and i am doing great–as far as i know i am still in remission. i am just on aredia treatments every 2 months i go bac…

DAY 105 AND VERY GOOD NEWS!!!

Hi Everyone,WEll its day 105 and i have very good news to report –I AM IN REMISSION__YEA,YEA,YEA!!!!!!!. i had a bone marrow biopsy on Monday and a skeletal survey and lots of blood work done and i got the results today. All are normal. The bone marro…

DAY 91

jUST A SHORT UPDATE. iT’S DAY NINETY ONE AND I AM FEELING PRETTY GOOD. I WENT TO MY ONCOLOGIST YESTERDAY FOR WHAT I THOUGHT WOULD BE A THIRD INJECTION FOR MY ANEMIA BUT I WAS TOLD BY THE NURSE I DID NOT NEED IT SO I AM VASTLY IMPROVING. i WILL GO ON AP…

SUSAN’S JOURNEY WITH MYELOMA 2007-03-13 14:58:00

HI EVERYONE,I WENT TO MY REGULAR ONCOLOGIST TODAY AND GOT A SHOT OF ARANESP–ITS WORKS THE SAME AS PROCRIT. i HAD SOME BAD BONE PAIN WITH THE PROCIRT SO THEY GAVE ARANESP THIS TIME. THE PROCRIT HAS DONE ITS JOB BECAUSE MY ANEMIA IS NOT AS BAD. SO MAYBE…

DAY 68

Hi Everyone,
It’s hard to believe it’s day 68–but here is. I am doing fairly okay. I did get my first injection of procrit about a week and a half ago–however i experienced some bone pain with it. Some of the nurses say it is normal and some of them say it is not so here i am again wondering which is true-however i indeed did get bone pain in my hips and lower part of my legs below the knee and my feet. I am just taking ibuprofen for the pain. But i have 2 more injections to go. Has anyone out there experienced bone pain with procrit? I have been feeling a bit unsteady on my feet and kinda like i have some sort of infection in my inner ear i think. But on the other hand i am growing some hair–not enough to feel comfortable without a hat yet but i am hoping that will be soon. My hair has come back sorta a salt & pepper look. WEll i see how long i can stand that. I am 48 but i don’t want to look 60 but maybe i will like it after all.
Well thats all to report for now. Will keep you posted. Susan

DAY 56

Hi Everyone,I waited to post untill i saw my oncologist today. ALl seems good my blood counts are all good but he say i am a little anemic. SO Monday i will start on procrit injections every 2 weeks for six weeks and then i will have my bone marrow bio…

DAY 46

HI EVERYONE, WELL HERE I AM AT DAY 46 –THINGS ARE GETTING BETTER AND BETTER –I CAN DRIVE AND DO ALOT THINGS LIKE I DID BEFORE BUT I DON’T THINK MY BODY HAS FULLY RECOVERED. THE DOCTOR SAYS IN 3 MONTHS I SHOULD HAVE 75 OR 80% PERCENT OF MY STRENGTH B…

Day 40

Hi everyone,Well i am doing alot better. I still do not have all of my strength back but i can do alot more very slowly–of course i do take a nap and sit down if i feel tierd but over all i continue to get better. Each day is a new challenge. Henk i …

DAY 35

HI EVERYONE,WELL I CONTINUE TO GET STRONGER EVERY DAY. I AM NOT HAVING TO TAKE MY NAUSEA PILLS IN THE MORNING AND I AM GETTING BY –HOWEVER I DO STILL GET SOME STOMACH DISCOMFORT AND I HAVE HEARTBURN WITH JUST ABOUT EVERYTHING I EAT AND THE BURPS BUT O…