Insurance, Will’s & Probate

The reason for this entry is to make people aware or reminder about will’s and insurances.

Sean didn’t have any life insurance when he died, obviously he couldn’t get any once he was diagnosed with Myeloma.

Categories Uncategorized

A Day to Remember Sean

This was a day to remember Sean, and try to look on the bright side.


This will mainly be some photos of the day.

1-IMG_4594 his two sons Stephen and James.

1-IMG_4574His daughter and one of the smaller relations in the Myeloma colours.

Categories Uncategorized

Paraprotein’s were up

Myself (Nigel) and Charito have been to the Liverpool hospital today, to say thank you to the Edwina the doctor who was treating Sean.

Categories Uncategorized

Funeral Details

Hi everyone it’s Nigel again with some updates, sorry for the delay but was awaiting the coroners decision before we could get going with the arrangements. They confirmed it was pneumonia that got him in the end.

Categories Uncategorized

Some Very Sad News

Hi Everyone this is Sean’s brother Nigel writing this blog entry.

This is to inform all of Sean’s friends and blog readers, that Sean pass away suddenly in the early hours of this morning 29th May @ 01:40.

On Sunday evening he had a bit of a high temperature, this carried on in to Monday, by the evening he felt very unwell and his daughter Amy, took him and Charito to the hospital.

Categories Uncategorized

Neglected Blog

Celica MontageI seemed to have done it again, sometimes I can write on my blog and have plenty of things to say and other days/weeks I forget or feel that there isn’t more worth while mentioning.

So far things are going ok and the last few days have been really good. It was Charito’s birthday on Saturday and we spend the day visiting garden centres and doing a bit of shopping for a few handbag. For some reason every woman needs a new handbag to match something else they haven’t bought yet, like a blouse or a pair of shoes that they will need to buy to match the handbag. So forever the circle goes!

The sun has been shining and made such a difference to the way I feel. I’ve also gone back to using my bright yellow Toyota Celica. Although the Citroen Xsara Picasso is a good car, for some reason I felt as though I was a disabled person on my last legs. (which may or may not be true). Driving around in the Celica makes me feel a lot better especially in the sun, although it is harder to get in and out of.

I’m not the type of person to give up and not to be positive, but I felt that the Picasso was doing that to me. When ever I parked up in a disable location and looked around at the other people, they were all driving similar vehicles, which just isn’t me.

I may get strange looks using the Celica as a disabled car, but at it makes me feel a bit better. Maybe I am different, always staying positive when I can. I obviously have my down days as we all do, but if it helps keep me going, then why not have a bit of fun.

I have a feeling that my platelets might be a bit low this week, I will have to wait to find out on Friday. I’ve had a few little cuts on my hand and they are taking a while to heal.

Nigel is coming over to stay for a couple of days (or at least one) so we are planning to try and get some photographs done, especially while the weather is good.

He hasn’t had any information regarding his DLI yet, but I think that will be done in the next few weeks as they aren’t going to be hanging around with it.

I always feel a bit guilty when I write about myself and what I am going through, compared to other blogs that I read, I have it relatively easy! (at the moment anyway). I know I whinge about my treatment not working and my paraprotein climbing all of the time, but at least I don’t have the liver and kidney problems that others have. I do have bone pain and nerve damage to my feet and hands, but I’d rather have that, than go through some of the treatment that my blog friends are going through!

From one myeloma patient to another, it is difficult to give encouragement as I’m sure we have all found, everyone is different. We all get treated differently the drugs work differently and our outcomes are different. So what do we do or say to stay positive. Well basically what everyone else is thinking, hang on in there and do what needs to be done, we don’t have much choice really.

Meeting up with others with the same or similar cancer can be encouraging, knowing what they have gone through, but it shouldn’t be taken as that’s how it is going to be for you.

When I speak to newly diagnosed patients, I try to avoid telling them that I have had several lots of treatment, all of which have have failed and two transplants that didn’t work. For them it may work first time and give them several year, we are all different, instead I try to stay positive for them and tell them how I got through the treatment without too much pain etc and hopefully encourage them to continue with their own treatment, without too much worry.

I personally get to have the same type of encouragement from others that have gone through similar treatments and been told they haven’t got much longer to live, only to prove them wrong by living several years more than expected and are still going. I’m going to be one of those.

IMG_0933_charitoSo driving around in my yellow car makes me feel better, especially in the sun and if it helps towards getting some extra time on the earth with Charito, I don’t care what other people think.

Maybe I should dye my hair pink! to see if that helps as well!!!

Watch this space.

My Life with Myeloma Sean Tiernan

Categories Uncategorized

Why does nothing go right for me?

I was at the Hospital on Liverpool on Friday where I got the results of my latest paraprotein levels. Guess what! They have gone up again. They were 13 now they are 23. They will probably continue to rise.

There are a couple of things that we are going to do, we being the doctors and me. The first is to increase the steroids that I am on with the Lenalidomide, I’m not back on the three day pulse of 40mg, which is 20 tablets for three days at a time. They are hoping that this will stabilise the paraprotein as the combination of steroids and Lenalidomide is the way that they manage it’s effectiveness. I’m already on the full strength of Lenalidomide, so they have changed the Dexamethasone to see if that works.

The other things that we are going to do is a mini transplant or Donor Lymphocyte Infusion (DLI). A DLI involves extracting the white cells from my Donor (My brother Nigel in my case) and infusing them into me. Nigel will have to go on the same machine he did last time that extracted his bone marrow, but he wont need to have the injection he had last time as it will just be extracting the white cells.

Once the cell have been extracted they are infused into me, the same way as

Categories Uncategorized

Photo shoot

Nigel my brother has been staying with me for few days. Its been great top spend time with him. We were going to go to tatton park to takeome photos but the weather wasn’t good, in fact it was pouring down, so we decided to go further north into Liverpool where the rain wasn’t expected until later on in the afternoon.  While I was in Liverpool I popped into the hospital to get a chimiron test done. This is the test that tells them if my dna is the same as nigels! We can’t do this test on a Friday, which is my usual appointment because it takes a few days to complete.

After the hospital we went into town to take some photos of Liverpool architecture.  I have a few photos that I will post once I am home and have downloaded them from the camera.

By the end of the day though I was totally exhausted and no wonder if my bloods were low.

Feeling much better now though and looking forward to seeing my brother again soon and arranging to take some more photos hopefully the weather will be good so we can get to tatton park.

My Life with Myeloma Sean Tiernan

Categories Uncategorized

Having blood.

I’ve had my appointment at Chester yesterday. I have the start another chest infection and the doctor has prescribed some antibiotics to see if that will get rid of it. Although he did say it might not work and we may have to try something else, we will just have to see howit goes.

My bloods are also low so I’m hospital now having two units of blood.

I’ve also had a really good few days with my brother but I will write another post about that.

My Life with Myeloma Sean Tiernan

Categories Uncategorized