Slowly my life is grinding to a hold. Every day I need more care and moving is getting more and more difficult. Els is having a day job taking care of me. My leg is getting even thicker and yesterday a specialized physiotherapist has brought a special tool to reduce the thickness. On Wednesday radiotherapy […]
End of April I wrote about my thick leg. My leg had become dangerously thick because the lymph fluids were blocked by a blast. A radiation did the trick and until this past weekend my leg had its normal proportions. On of my biggest fears was this to happen again.
Alas I must report that […]
38. You can count them.
Today we had to let Doris go. Over 17 years of age she began to retain fluid. The vet diagnosed a serious heart-condition. Of course we knew we had this coming. This afternoon she will be buried alongside Oes and Daisy.
She was a terriffic cat, always kind to everyone. She had a fantastic catslife.
In 1973 I left my parents house to live on my own. I was in the last year to become a teacher. This was a very important year for me in which a lot of important things happened to me. I was asked to play in a band which resulted in a long cooperation with […]
Yesterday I was back at the hospital. Monday, after a bad night with a fever, I had already been in the ward. This visit, however, was in relation to an earlier appointment to discuss the CT scan I had the 31st of July. There had been a discussion with the radiotherapist and the hematology team. […]
Yesterday I said my last goodbye to Bas Sibbing. It was a beautiful, but very sad occasion. I was happy to have Els and Niels to support me, sometimes literary. We had a lot of contact, also through our work for the website of cmwp.nl. I wrote an IM for the patients contact group.
It was high time for a new blogpost. So many things have happened, I had hardly any energy and time to write.
It was a beautiful, melancholic day, Monday last week. We had to say goodbye to a very sweet aunt. She died on Monday July 1st, 91 years of age. The oldest sister […]
I find myself in the end of the second cure series. Just a couple of days taking Revlimid (15 mg) and I can take a break for two weeks. Without any evidence I have the feeling that I’ve gotten into a more stable period. On July 8th the third series start. It’s confusing to adjust […]
Two weeks of chemo are done. The Revlimid 25 mg gives me hard times and in week 20 from may 14th I had two shots of Velcade. In week 21 we decided to pause the Velcade gifts because my Polyneurapathy was rapidly increasing. That has been more or less successful. The pain in my lower […]