My blog reader TAB sent me his most recent update back in August (I KNOW I KNOW I KNOW!!!), but I was so busy with my parents and their cataract removals that I forgot to post about it! Until this morning…Sorry, dear TAB!!!!!
Now, please note that he mentions graphs and worksheets in his update. You will have to get in touch with him directly if you want to see those (see TAB’s comment below for his email address). Okay, here goes!!!
Current age: 72
Diagnosed 8/6/1998 with Multiple Myeloma IgA Lambda
This is an update of my report “Smoldering Myeloma – 11 Year Case Study Using Supplements, Revised Aug 6, 2009
- I have been smoldering for 15 years.
- I remain asymptomatic with no C. R. A. B. symptoms, that is: No elevated Calcium, No Renal failure, No Anemia and No Bone Lesions.
- The latest IgA value of 2741 mg/dl is the lowest it has ever been since diagnosis in August 1998! See IgA Graph. M Spike is 2320 mg/dl (lowest ever)
- Hemoglobin dropped 1.7 sigma.
- I remain on my daily supplements of Inositol, IP6, Selenium, Vitamin C and D, Trans Resveratrol, Curcumin plus a multivitamin. I take one half of the IP6 /Inositol first thing in the morning on an empty stomach and the remaining half before bed. I take the Curcumin all at once usually with a meal that contains some fat or oil.The other supplements I spread out over the day. Supplement cost is about $1.37 per day depending on current prices. My current supplement protocol is shown on the Supplement worksheet (last worksheet). See the notes on the IgA worksheet for the changes that I made over the years in an attempt to refine the supplement protocol.
- I feel that the trend lines in the attached graphs show a definite correlation of improved markers with the taking of supplements. The MM has by no means been eradicated, but I have enjoyed a very homeostatic control of the markers with no symptoms thus far. These supplements may or may not work for others as they apparently do for me. I have been lucky to have had the time to see results which in some cases took years to manifest. I firmly believe that the supplements are responsible for my stable condition.
- I eat a typical American, somewhat well-balanced diet, but nothing special. I enjoy golfing (walking) in the summer and have a Body Mass Index at the upper end of normal.
- No problems to report.
- According to the NEJM paper by Kyle et al (Ref #6 in the Case study report), the probability of progression from MGUS to Myeloma is a constant 1% per year. For smoldering myeloma the risk of progression is greater in the early years but decreases with time. Examination of the graph of Figure 2 shows that after 14 years, the slope of the smoldering curve is identical to the slope of the MGUS curve. I interpret this to mean that my risk of progression is now 1 % per year, the same as for a MGUS patient! See NEJM Figure 2 on the next page.
- I am providing this information in two different formats. One is in pdf format for easy reading and printing. The other is in Microsoft Excel spreadsheet format. If you would like to use my Excel spreadsheets to help you plot your data (I highly recommend plotting one’s own data), you can just replace my dates and values with your dates and values, and the graphs should (hopefully) automatically plot for you. When I visit my doctor I show him the graphs which helps him to visualize any progress or lack thereof rather than him scanning through several pages of numbers which makes looking for trends very difficult.