New Way of Movement

It’s been a while to post but this hasn’t slowed me down to handling the things I have on my plate. When COVID 19 hit like so many there was a huge concern, and still is in regard to what this virus means. It was also a concern in what It means for people with underlying issues such as myself. When we hit into the second month of quarantine did I move my concern to action by reaching out to my team to get my blood work tested. My greatest fear was would my present remission state change due to this virus? As I’m sure there are many people worried about similar thoughts. We were at a point where for many we could not reach our doctors for a one to one appointment, and that is scary and frustrating for anyone with cancer. What do you do when you’re totally alone in this or feel like you’re in it alone?
Questions
I’ve been active on the circuit talking with other cancer survivors during this time, and I tell you it’s been quite scary listening to others express their feelings and for some defeat. It just proved to me how much we truly depend on our health team of doctors, nurses, lab techs, etc. to care for us, but when you can’t get that care when you need it exactly; well it just forms a whole bunch of emotions and anxieties. I didn’t react right away but after a while, I reached out to have a discussion on what should be done, and when it was suggested to get local labs at a lab site closer to my home I was pleased. I was pleased because I stayed vigilant asking the question and following up. I think in cases like this some tend to feel that they should be approached in care, and in this case that may not be the most ideal, as we are in an unprecedented time. Which proves the case the necessity for patient advocacy.
So I end this here to say stay forceful in your treatment process and know that you are not alone. If by any chance you don’t have a network that is strong in direction during this time, here are a few leads to get some assistance:
Be well and stay strong!
Yolanda

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Multiple Myeloma Podcast

Hi There,

I’ll be teaming up with my buddy Kenny Capps for a cool podcast on everything thing myeloma. We hope to give a different outlook on topics and what is on the mind of many young adults affected by the disease multiple myeloma.

More details to follow soon.
Email me for more information-
madaboutmyeloma9@gmail.com

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The Audacity To Live…

I’ve been moving and shaking in the myeloma community, and it feels good!
Anyone who has wandered onto my blog, know that I’m doing and feeling well…
Sort of, as I did have walking pneumonia some weeks back. If it’s not one thing it’s another. I’ll have my labs drawn and a follow-up in a few weeks and pray there won’t be any hiccups in my remission stage.

Well just to get you up to speed, I did a presentation at Mount Sinai Hospital on the Stain of Racial Disparities as it relates to Multiple Myeloma. I touched on the way of the few African American advocates with this disease; We’re far and few between, yet cover this beast in higher incidences. Apparently, this conversation has opened up the door to more discussions such as this, and I’m happy to keep at it!

I’ve been working on a fitness coaching/ trainer business and look forward to our website in a few months, or sooner. So I know exercise can be a sore subject for many, as who has the ability to workout after treatments? Well, I know all too well the challenges as fatigue hits many of us strong. Yet, with that being said, this has been my savior of being active while on treatment. My experience has been trying to keep positive and active while having this disease. Could this be why I’m in remission? Who knows but I’m sure it hasn’t hurt the outcome. I’ll offer my clients an online hub to follow my suggestions in being fit with restrictions. I hope to share this with you very soon :)

I’m honored to have been accepted to 2019 Healthe Voices in Dallas Texas. Healthe Voices is a spectrum of engaging and impactful advocates repping their platform. I was one of the few repping multiple myeloma. There are some interesting things in the works as we move in #madabout myeloma movement… won’t you join me?

Well that’s about it.

The audacity to live is about trying, moving and staying relevant as we face this disease together!

Best

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