February week two update.

Mike is pretty much the same, but I went down with a bad cold on Wednesday, which doesn’t help when you are trying to take care of someone else almost 24/7. I am feeling slightly better today, the nose is still bunged up and I have a cough, but my ener…

February week one update.

I thought I would update the blog so everyone knows what’s going on. Mike was only in hospital Monday night. They drained his chest on the Tuesday after which he decided he wanted to be at home. The doctors tried to argue with him, but the reality, whe…

Tricky times

The last few days have been a bit tricky. Mike ended his birthday by calling an ambulance as he couldn’t breathe. He had already discovered that his HB had been 8.5 (85) the day before and he reasoned that was the cause of his problems. As it was almos…

Happy birthday to you…..

Tomorrow is Mike’s birthday. His health will stop him celebrating as he once would have, but I will definitely be celebrating the day that my gorgeous husband was born. I can have a drink for us both!Happy birthday darling. xxxMike aged 11

Maudlin moments

I am having a bad day. Even before Mike starting discussing his funeral plans I was emotional and tearful. I have been spending too much time looking at old photographs of Mike, photos taken just after we met, photos of holidays together, photos of our…

Every cloud.

Yesterday Mike went off to have a bone marrow aspirate, Dr B. wants to check what is going on with his bone marrow, whether Mike now has the added benefit of MDS / myelodysplasia / myelodysplastic syndrom and also do some genetic testing on the sample….

What can you say?

We went to see Dr. B. yesterday afternoon. As you would imagine he was surprised to see Mike being wheeled in by me, he had hoped the chest drain just before Christmas would have made Mike feel better. Mike’s platelets had dropped again along with his …

Happy New Year, 2019 is here.

The weather here is what you would expect from winter in England. The sky is overcast and the sun low in the sky behind the thick cloud. Certainly not a good day for taking photographs (well not for someone with very limited ability.) So instead I will…

Another year bites the dust.

As another year comes to an end I thought I would contemplate the year that has gone. At the start of 2018 I gave up FB, I was tired of my own envy for other people’s lives. My friends all seemed have endless health for themselves and their family, ple…

In brief.

The respite was short. One night in the hospital, 1.5 litres of “fluid” the colour of a gold beer taken from the pleural sac and two antibiotics to take. The first night out he slept like a baby, last night he managed six hours, which is good, except a…