Da First Day

Being the not so energetic guy, a bit nauseous, really sleepy and just plain old lazy here you have a recap by my charming, loving and most generous wife, Lu.DMSO – this is the chemical which Scott’s stems cells were preserved in for the last 2 ye…

Rebirth Day 0

A Beautiful BirthdayA Mayo Sunset July 2nd, ’15 is slowly coming to an end. Around noon today I received ~3.5 million of my own blood producing stem cells that have been frozen for a bit over 2 years here at Mayo Jacksonville. It is with a bi…

Reboot Day 0

Earlier today I started my bone marrow reboot at 11 am (Yes it’s July 1st so I tip my hat in honor of my friends celebrating Canada’s birthday). The wonderful drug traveling through my body and soul is wiping out my blood cells. Every last one of those…

More Trials

So I’ve added a couple more trials to an ever growing list. At last count I’ve had 12 different regimens over the last 10+ years half of which were clinical trials. There is definitely a “Aren’t you special.” feedback from all the attention clinical tr…

ABT-199 Trial

I started a clinical trial of ABT-199 3 weeks ago. (sorta technical Myeloma Beacon EHA 2013 Congress Abstract P210 (Poster Presentation)) It is in combination with Velcade and Dex. The Dex is being reduced thank you very much!Three weeks on t…

Biannual Review

It is amazing to me that I can go 2 years without thinking about Laughing Plasma Cells. After the last post about my newly repaired arm I never went back to work. Instead I retired, moved to Amelia Island and am working on reinventing myself. As for th…

Plumbers Tape

It has been over a year since I first tried MLN8237. A run of 16 months on a single agent is pretty amazing all in all. I take Curcumin C3 complex when not taking the study drug along with a few other complementary supplements just because I believe in…

Holiday Cheer

It has been close to 9 months since I last felt like posting anything. This clinical trial has been relentless as so many are with all the testing and documentation. There is enough cancer in my life – I don’t need to blog about it as well. In short I’…

Status Quo

It would be nice to say something like gone, vamoose, finished, cured, but alas I settle for stable. There was some rather modest bone improvement according to the radiologist who read the MRI but other than that – boring.Aside from the sleepy feeling …

Random Number: 8237

How is it that Millennium landed on number 8237 for the designation of the investigational drug I happen to be taking? How is it that the DNA mutation dice I rolled happened to spell myeloma? How is it that of the long list of just likely side effects,…