Happy Birthday to me… some Refections and Realities

Happy Birthday to me! I made it another year!

11-22-2009 turned the big 5-0… then one month later…
12-30-2009 officially diagnosed with Myeloma
11-22-2013 made it 4 years since cancer invaded!!!

So on this 4 years post-diagnosis-Myeloma-is-now…

Chemical Warfare part 2! Mission = Remission Again

Start running Myeloma!!!
Chemo’s coming to gobble you up again!!
So we picked up some of my prescriptions, after my treatment planning appointment Nov 18… I couldn’t help but laugh when I tried to organize all these meds in my “pharmacy drawer”. Th…

11 12 13… Numbers and Nonsense

Just had to write a blog entry on 11-12-13 !!!

Not a whole lot to update on except that I started my Dexamethasone steroids last Friday with a few very funny adventures! My Docs are starting me out slow at 20mgs weekly (as we are still consulting abou…

Jelly Beans and Other Thoughtful Thoughts and Realties

Just in case you’re tired of my silly musings…
Here’s some inspiring and thoughtful thoughts from others:

Our Lives Represented in 
Jelly Beans

And Thanksgiving diagnosis reflections
by another blogger diagnosed with the evil Myeloma:

Sean’s Burgundy Thread: Dear Multiple Myeloma-

 “Dear Multiple Myeloma”, Sean writes, “Do you remember me? 
I am the poor sap that you decided to terrorize during Thanksgiving week of 2008… ”
========================================================

 And so………….

Ugh! I’ve been sick more than well recently and I am not fond of not feeling well.
Everyone thinks I am so strong for handling cancer as I have, but honestly friends… I really am not that strong at all. I am strong when I feel well. I am not that strong when I don’t feel so well. Suffering for days with a fever leads me down philosophical roads of unsettling realities…

These last 2 high fever viruses that attacked me have awakened NEW realizations of OLD realities… that my immune system really is compromised due to an “immune system cancer”, and naive me, I really do have to continue to be ultra CAREFUL, make that PARANOID of all the germs out to attack me. Duh! Note to self!!

I’ve tried to trace the trail of my recent illnesses, and the only thing I come up with is that I slacked off on staying in my sterile bubble. I tried living life somewhat “normally” again…
I slacked off a bit and shook some hands, hugged some friends
I slacked off a bit and opened some doors without a protective tissue
I slacked off a bit and ate at buffets and restaurants and risked cross contamination galore
I slacked off a bit and threw caution to the wind and went places, had fun, commingled with people in public places.
I slacked off a bit and started scheduling appointments with random students.
I slacked off a bit by being “normal”, and paid for it… dearly… with piercing pounding headaches which lead to high fevers for days on end, which lead to crazy viruses in my upper and lower body… I will spare you the details.

I felt awful and I don’t do well when I feel awful.
Awful takes the helium out of my happy filled balloons.
Sorry, I really am not that brave and strong when I don’t feel good.  
I have learned my lesson:
Hello stupid antibacterial cautious bubble life…AGAIN
Hello to being forced to accept I am not a well person and facing up to the reality that I won’t ever be “cowgirl-well” again.
Hello to being sick of being sick, but having little choice in the matter.
I don’t like not having choices
I don’t like external factors controlling me
I don’t like being sick and I don’t do well not being well.
I have never been of the victim mentality and I don’t like being victimized and controlled by cancer!
But, I am better now and I do thank what minimal immune system I do still have, for battling on my behalf!

Every other day, my sweet hubby Jim would pick
some of his spectacular roses to boost my spirits
and help me feel better!

Ugh! I haven’t even begun my Dex steroid meds yet, but I will this Friday as I have an oncology check up on Nov 14 with my City of Hope oncologist, and then another on Nov 18 with my local oncologist (love them both!)
I think I should know by then, what treatment plan they have in mind for me…
Just in time for my November birthday,
Cheers! Happy November cancerous birthday to me!

So on a happier note, on Saturday when I could finally walk without being dizzy and dared being away from the bathroom, Scott said… “Mom, let’s go for a drive in your bug! That will make you feel better!” and feel better it did! Here’s to our first 5 mile road trip (to Coco’s and back lol!) in the “baby blue tin can bug”, with Scott driving and the rest of us praying we survive!

My bucket list baby blue bug makes me happy :)

And Birdie makes me so happy too! 

And of course!!! Everyone and Everything else in my life makes me happy!!!
I am blessed and I am grateful for so much
You can’t take that from me stupid cancer!!!

Brief BabyBlue Bucket List Bug Blog update

Surprise!!!
Miss Baby Blue arrives a day earlier than expected!!!

Just after sunset on Sunday

all the way from sunny Florida!!

She sputters, spews smoke

sputters again, spews more smoke, stalls out

 and I’m just way tooooo excited to

Biopsy results and a Bucket List Baby Blue Bug!

B is for Beware
Because this Blog is Bubbling over in silly B-Babble :)
B is also for Blood cancer Biopsy results Below

B is for a cute Bucket list Buy I spied
B is for my new 1974 Baby Blue Bug
B is for this Blast to the past Beetle I Bought in a f…

15 Hours Fast Forward

Did you notice?
Tuesday night September 18 was a stunning full moon!

My “PonyPal” daughters Alissa and Courtney came home from college to moonlight ride with me!
Check that, Bucket List!!

Grooming fuzzy Buckskin, Black and Red-Appy spotted coats in …

Another New Normal- Confessions

So many of you have asked me… why I am still working?
With the last several month’s blood tests revealing that I am really
officially out of remission, so many people are surprised I am still
coming into work…

(My view walking into my office o…

August status check… not the status quo

And so…
I had
an Oncology appointment
today…

A week prior, I casually took my “routine” blood tests
Confident in my continuing winning remission status.
Confident… since I had graduated to every-other-month-status-checks!
Confident, as that’s a …