Day 50

Madison and “Papa” – May 2019 I’ve reached day 50 of the 100 day post transplant mark.  I’m told that the I should start feeling closer to my old self after day 100.  There is also less likelihood of complication after day 100.  So I’m ½…

Day 42

I’m at day 42 post-transplant.  I’m making very good progress.  Results wise – the numbers are very very encouraging.  The donor cells are engrafting and I’m growing back an immune system.  I’m no longer neutropenic (which is when m…

Bulletin

My transplant day was moved up to tomorrow (Tuesday).   I’m not 100% sure I can explain why, but it has something to do with the fact that the donor product is a little smaller than anticipated and also with the fact that they want to remove …

The Transplant

(A little drum workout to accompany this post)It’s now been a year since I was diagnosed with B-cell acute lymphoblastic leukemia.  It’s been a very long year that included 12 rounds of heavy chemo, pneumonia, a cardiac arrest, a life-threatening …

Treatment Holiday!

Sunset at Key WestEnjoying a two week respite between immunotherapy sessions.  I’m presently treatment free! We took advantage of this gift by stealing off to Florida for a few days in Key West, followed by a few more days celebrating the Passove…

Fantastic Voyage

The 1966 film Fantastic Voyage involved injecting a miniaturized submarine with miniaturized scientists into the body of a scientist to hunt down and destroy an otherwise fatal disease in his body.  Essentially, that’s what’s happening inside me r…

1 in 10,000

Leukemia cells – the enemyI had hoped that this blog update would be a celebration of the end of overnight hospital treatments.  Indeed, I completed my last round of Hyper CVAD treatment on Feb 4 and happily skipped out of Cedars Sinai expecting n…

One More Time Around the Sun!

Today (Saturday) is my birthday.  Birthdays are small victories for all of us, but especially for cancer patients.  I’m particularly gratified to be celebrating this one.My last bone marrow biopsy showed I’m still MRD-, the best possible resu…

A Restful Pause

Joy(click the link above to hear my favorite holiday song while you read this update.).  I’ve completed Round 5 of HyperCVAD. One more round to go…. consisting of two hospitalizations…and treatment will be finished.  I endured another bo…

False Alarm!

Had a very scary morning.I was getting packed up for my scheduled 5b admission this morning when the phone rang.  It was Doctor M, my oncologist, calling to ask “are you coming?” I told him I was planning to be there for admission this afternoon…