New Blog Address

Hi all,Just to let you know that I have now moved to word press.My new address is https://debsjourneywithmyeloma.wordpress.com/I’m hoping this will allow people to sign up to get email updates, and also for me to do iphone updates….blogger was just v…

Bone Marrow Biopsies, Peripheral Neuropathy and Wigs

So, my appointment last week confirmed what I had expected. I am now off the velcade and awaiting transplant!!The day started with a meeting with Faith who said that the PN was now significant enough that she felt it was better for me to come off it an…

Time to Transplant

18th July – I finally have a date.I feel bad because everyday for the last week I have meant to post on here. And everyday has been as manic as anything and I haven’t had a chance. I will try to remember what has happened!It all started at my appo…

Countdown to zero!

So it was the end of cycle 3 meeting on Tuesday, but I thought I’d wait till now to update you as I don’t get any figures until a few days aferwards.So, where I was at 12, I have dropped down to 8….single figures, hurrah!!! They have said to me since…

Arrggghhhh

So much has gone on this last week or so….it is like a disaster film really. Everywhere I turn I seem to get told bad news but perhaps that’s just life as you get older. So, I’m going to try to stay positive with it all!!! Hurrah! So today’s post is …

Easter bunnies and all that malarky!

I think I’m missing posting this by a matter of minutes in the end, but HAPPY EASTER to everyone!! What an Easter weekend and I have to say that so far it has been great. Yesterday I think was my favourite day in a long long time. Just the 4 of us and …

Summer sunshine

Well I thought that I’d use my time hooked up to my fluids to write an update. Seems a shame to be stuck inside on a drip when it us so sunny outside but hey ho – hopefully it’s all for the right reasons. I have to have an hour of fluids everytime I ha…

Hurrah – some good news

I was back at the Marsden today for my second dose on Cycle 2….and the great news is that my paraprotein has come down from 27 to 15!!! We are both over the moon about it as it means that things are definitely going in the right direction, and even i…

Just another long day ….

Well I’m at the hospital again. We got here nice and early in the hope that we could get out by lunchtime and enjoy some of the last sunshine in the local pub. I can’t believe we haven’t learnt our lesson…it’s now 12.30, we’ve been here 3 hours and I…