Can’t Give Up

I just wanted to come on here and vent about this cancer and how it is affecting everything in life right now… So things are moving super slowly… I have managed to pack maybe half of the apartment, but struggled finding the energy to pack the rest. I have managed to sell the washer and…

Bye Bye April

It took me a week to recover from last weeks ‘empty the storage unit ‘ road trip to Waynesville. I have begun to inventory, organize, and started packing up our apartment. My back is killing me, but my friends and kids did all the heavy lifting! I feel O.L.D. crotchety. All I did was a…

Change gon’ come

Sitting here listening to Sam Cooke, the perfect sound as I am home alone with Charlie… the song “A Change is Gonna Come” has me thinking about our lives right now and what awaits us over the upcoming months. …”There been times when I thought I couldn’t last for long But now I think I’m…

Ugh

That about sums up what I am feeling at this moment. I spent a good hour or two at the Urgent Care Clinic as I was waiting to get approval to be seen as a patient in the future. I need a primary care doctor, so we can establish a baseline of who I am,…

Journey down south

Things have really changed over the last several months in regards to my health. I am still waiting to feel ‘awesome’ again, like I did when I got out of that first transplant. I have gotten news that two people that I know had transplants during the same time as me have gone into remission,…

Something’s got to give

Sorry for the delay in updating. I have had a rough month. I started the Revlimid maintenance chemotherapy, but even before that, I was noticing my body was no longer feeling like my own. I feel like a 60 year old woman sometimes. We all know I am not in remission, but ‘what exactly does…

Odds Were…

Never in my favor when this all began. I got my test results back and it showed I had a VGPR ‘very good partial response.’ There is nothing extraordinary about my results… It was not the CR ‘complete remission’ we were looking for (it is rare to get anyway), but we gave it our best…

Happy New Year

It has been a long time since I sat down and really reflected on how much has changed since the intense part of the journey started in 2012. My oldest daughter recently described to me a feeling she has had: she says it feels like ‘her life does not feel like her own yet and…

Waiting on a home

Had my most recent check up last Friday and all of my test results came back normal. I won’t get another bone marrow biopsy until 100 days after October 15, so I will not know if the transplant put me in remission or not… but I am fairly confident it did the trick. I still…