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Receiving Strange Comments

I don’t know who reads this, but if you do & know the answer to my question(s), please respond.

I am getting all sorts of weird comments & they are mainly coming from Facebook…I think. Also, the person commenting is usually addressing somebody other than me. Some have actually put a name of somebody (not me or even a previous commenter) in the beginning of their comment, & then say something that has nothing to do with my post. That’s the part that is really weird.

Any ideas what is going on? (I am putting all these on my SPAM list in the meantime.)

First Post in 2012

I don’t like that I’m so inconsistent in my blogging here. My intentions were good when I created this blog. They remained good throughout the years even. But I just can’t seem to get to it on THIS blog.

I started out with three blogs (on three different locations). My purpose for each blog was not clear…to me. I thought I’d had a plan in my mind, but I really didn’t. I’d hoped that in time it’d just work out and I’d figure it out. It hasn’t happened. Yet.

What mainly keeps me linked to this blog is that every once in a while I receive comments that touch my heart, inspire me, or plain old get my attention. Last November I made friends with a wonderful lady who had commented. We send emails back-and-forth periodically (she’s better at it than me). (NOTE TO SELF: I need to not only write her, but get pictures together and send her a package. Maybe I can accomplish this by July.)

I also receive a load of spam associated with it. Comments do not show unless I approve them. There are options for the comments to approve, trash, or assign as spam. For some reason, I suddenly started receiving lots of spam comments. Over the years I’d accumulated over 1500 spammed comments. For some reason I deleted them. I think I opened the gates for those spammers to spam me again. Perhaps in time the spam will once again slow down…once I respam the spammers. *sigh* I don’t even understand what the purpose is for spammers, but they must be really sorry people/groups.

Anyway — here is my first offical post for 2012. Thus far my MM is remaining dormant. I am not taking Revlimid or any other treatment for it. As I explained in previous posts, my doctor told me that the current regimen is to place MM patients in partial remissions as I am in, on a maintenance dosage. It’d probably be Revlimid and I don’t know if it’d include a steroid or anything else. Since I’ve maintained very well without it for over four years, he’s leaving well enough alone.

Again, as I’ve stated in previous posts, I do have spinal cord damage and have major issues with it. The tumor I’d had at my T8 caused my spinal cord to atrophy. I don’t function well from about the waist on down. That includes walking and even moving my legs and feet, let alone eliminating (urinating and bowel functioning). With not functioning well comes extreme discomfort and pain. There’s a difference between the two and one is not any easier to cope with than the other. That might be a good topic for another entry in that maybe I can reach another individual dealing with the same thing.

While frankly I hate having to deal with this spinal cord damage because of the pain and discomfort, I think just as challenging for me is that I do not know of one other individual in the same predicament as me: MM’r in partial remission & doing fairly good but has spinal cord damage with similar effects as me. As weird as it sounds, I envy women who get breast cancer as opposed to this. They at least have common issues and can bond. They can relate with what the other women are experiencing. Even other people with MM seem to have much in common. At least it seems that way to me. I’ve not come across another individual who got MM, went into a partial remission and doing relatively well considering the MM progression–but then have to deal with the crippling & demobilizing effects of damage to the spine. My spinal cord damage does seem to be getting worse, too, which is a little alarming to me. I get around, drive to the store and to most doctor appointments, and such – but it is difficult. And it’s getting more difficult. But I still can do it. It would be so helpful to talk to another in the same predicament.

I’ve checked out support groups, asked the nurse practitioners, doctors, and other medical personnel I come in contact with if they knew of one, but to no success. I haven’t tried in a while, so it may be time to search some more.

I do belong to a MM support group and I highly recommend anyone with MM to find one. The one in my area is a great group. They have bbq’s and special meetings throughout the year and are supportive of each other. Over the years I’ve lost contact with them. It’s weird I say this as I don’t attend the meetings – but I am on their mailing list. It’s like I’m a lurker…lol. They’ve just started sending out meeting minutes. I had attended only a few meetings at the start but discontinued when I started having problems getting around. They are about an hour’s drive away and in the depths of the city. Last I attended they are on an upper floor but I do recall there is an elevator. I’m not sure I have the physical strength to first make the drive, then make the walk to the meeting room, then have the stamina to endure the meeting and make it back home. This is something I should reconsider. Perhaps during the nice summer weather I can try to attend a meeting and get reacquainted. If there is another in my personal predicament, by being an active participant in the group would be a way meet them.

I need to try to muster the courage and the strength to perhaps give one of those meetings a try. But I also must have the wisdom not to bite off more than I can chew. As I type this I know that it’s not feasible for me to drive that far to a meeting – as good as it would be for me. I will still ponder it to make sure it absolutely is not feasible…that I’m not wimping out. Sometimes I get myself in trouble when I’m afraid I’m being a wimp and I get myself out on a limb I have no business being on.

This post is disorganized. There’s really no central theme or point in it, is there? Well, I guess I did touch base.

I plan on writing again, perhaps one entry to focus on just where I am in my mobility or lack of. It will either be helpful to another with similar symptoms OR I may meet someone with whom we can share our ideas and what works for us.

Also, I will post pics of my patio. As I’d mentioned in an earlier post, I planned on enjoying my patio this summer. I’ve been sensing that I am slowly getting worse in this spinal cord damage. I don’t even want to admit it, but I suspect I will eventually be wheelchair bound. *sigh* In the meantime, I am going to do as much as I can to enjoy what independence I have left. That stated, I planted lots of flowers and veggie stuff. My patio is full of various potted plants. I got that new umbrella I needed. I love it. In another post I will not only describe my patio but I hope to post pictures of it. But I will inform that I have four different tomato plants (all with tomatoes on them already), four green pepper plants (one with two nice sized peppers already!), herbs of thyme, rosemary, cilantro, & parsley, and spinach. Then I have violas, impatients, gerbara daisies, another kind of purplish-white daisy, and some other lovely flowers that I forgot the name. I’ll list all that in the post.

Until next entry….hopefully in a timely manner…God bless!

Catch Up! It’s Been Ages!

My goodness, it’s been five months since I’ve written, and then it was about politics! Egads! What’s wrong with me? Politics are about as lethal as MM! At least in the past three years! lol

It’s amazing that the last time I was on any treatment for MM was in October 2007. I was on Revlimid and Dexamethasone. It’s been so long that I’ve even forgotten the dosage and schedule. My “numbers” (e.g. IGG serum, & other markers) have remained in the normal range…except there’s one that’s high…but it’s not one that really matters.

My main problem now is the spinal cord damage at my T8. I’ve written about it, so you can look through my entries if you need to hear about it. One day I may just clean this blog up. It’s not organized according to topic.

I saw my oncologist about a month ago. He told me that the regimen today is that once you gain a partial remission (or a ‘very good partial remission’) like I have, “they” keep you on Revlimid….I guess to keep things in check. Since I’ve been off of it for so long, he’s going to leave me alone.

Remember:I changed doctors at one time. Before I returned back to my original oncologist, I had transferred doctors and stuck with my SCT doctors.

I was a little jarred the other day when I found out a lady I befriended in about 2007 or 2008, her MM has returned. It was returning when we lost touch. I heard from her the other day and she’s had two more back-to-back SCTs (unsuccessful). She had tumors in her legs and had some operation to take care of whatever was going on. She’s now on ‘chemo’ and she named about four or five drugs. Revlimid was one of them. She mentioned that nasty “H” (hospice) word. I guess they talked about it, I don’t know how serious, but….they’re setting that aside for now.

This is upsetting to me because when I first met her, she was doing better than I was. She had a successful SCT where I didn’t. She was riding her horses where I couldn’t. The ‘fat lady hasn’t sung’ yet, so I’m not giving up on her. She’s got a great attitude and the Revlimid might be just what she needs. If you’re a person who prays, please pray for my friend, Jackie.

Well, other than it’s been five months since I’ve touched base and that I’m still dragging these crippled legs around, that’s about it. My MM is laying low. I’m still in yucky pain/discomfort from the spinal stuff and I still have trouble with “elimination” but there’s worse things that could be going on. I enjoyed my patio this last summer reading under my table umbrella. I planted flower pots, tomato plants, arugula & green onions in containers and had a regular little garden on my patio. Maybe I’ll post some pictures to show you how “cute” my patio was. It will be cuter next summer. Oh…and I’ll have to buy a new umbrella. Foolishly, I forgot to close my umbrella one night. A very windy rain storm approached and blew my table over, umbrella and all. Bye-bye umbrella. I plan on replacing it with a “cuter” umbrella next summer.

God Bless!

Obamacare’s Broken Promises

Senator John Barrasso (R-Wyoming) said in his March 8th, 2011 piece, “Americans want the health care they need, from the doctor they want, at a price they can afford. The new law fails this test. It’s only taken a year to break almost every one of the president’s promises.” Then Senator Barrasso describes a broken promise for each month since March 2010.

    March ’10:

Promise: Obamacare would reduce the deficit.
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The cuts to Medicare could drive up to 15% of hospitals out of business.

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In order for over 200,000 Americans with preexisting conditions and expensive health insurance to be eligible to enroll in the new high risk pools (created in the health care law), they’d first have to drop their insurance and go without coverage for 6 months.

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The Associated Press blew the whistle on the administration about the “tax credits” to small businesses. The only businesses eligible for these credits employed fewer than 25 people. For companies who employ more than 10 people with salaries over $25,000, the tax credit “drops off sharply”.

    July ’10:

This administration’s Justice Department “confirmed the individual mandate penalty is a tax increase.” But, when ABC news’ George Stephanopoulos asked the President if the mandate penalty was a tax increase, the President ‘rejected that notion.’ Contradictions?

    August ’10:

The President assigned Dr. Donald Berwick to run the Centers for Medicare and Medicaid Services, without a Congressional hearing. This is the guy who says he gets a ‘romantic feeling’ over the UK plan. Dr. Berwick believes in *government rationing* and at least honestly states, “the only issues is whether we ‘ration with our eyes open’.” President Obama promised not to ration care. Another broken promise.

    September ’10:

Remember when President Obama repeated over and over and over again that if you like the coverage you had today, you can keep it? He promised the same about keeping your doctor. The new rules estimated that 80 percent of small businesses would be forced to change the coverage they offer their employees.

    October ’10:

Obama’s cronies from unions and big corporations began complaining about the expensive mandates. So, for those “politically connected to this administration”, “waivers” were handed out. What about all the fairness this President and the liberal Democrats preach about? Let’s see—the American families still will be expected to take on the law’s expensive burdens – just not the President’s “favorites”. That’s reassuring.

    November ’10:

The majority of the American people made it very clear they did not want this law. They were totally and wholly ignored and even ridiculed by the President and Democratic party. As a result, the Republicans were handed their biggest majorities in the House of Representatives since President Eisenhower.

    December ’10:

President Obama and the Democrats said the country needed this law. The same law that one of the biggest unions in the country, the SEIU (Service Employees’ International Union), admitted that fulfilling the requirements of ObamaCare would be “financially impossible.” A federal judge in Virginia ruled that it was unconstitutional to force Americans to buy a product.

    January ’11:

“… the Medicare actuary called the administration’s claim that the health care law would bring down costs “false, more so than true.” Also, a federal judge in Florida struck down the entire law as unconstitutional.”

    February ’11:

“In February, we learned that the IRS’ 2012 budget specifically mentions the health care law 250 times as a source of authority and funding for new powers. They called the health care law “the largest set of tax law changes in more than 20 years.” To begin implementing these changes will require thousands of new Washington bureaucrats.”

Nancy Pelosi stated, “We have to pass the bill so you can find out what’s in it.” Now we know….it should be repealed and replaced.