Free Light Chains July 2020

FREE LIGHT CHAINS W/RATIO from 10/17/2019 6/29/2020   This is the most current result Here are the last 10 results in graphs

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Update about treatment – maintenance

Hi – Sorry I haven’t updated the blog in a long time. I did pretty well (number-wise) on the carfilzomib/cyclo/dex protocol.  I did feel kind of crummy after treatment, though. By February of 2020, my doctor decided I could do a few more cycles and then go on maintenance. Because of the pandemic, I was …

First Round of Carfilzomib and Cyclophosphamide Results

Even after all this time, I’m still not sure how to take the free light chains results.  I’m not a science-y person.  Dr. Rodriguez says that there’s been an improvement. This is the result from last week’s blood draw. Component Your Value Standard Range Free Kappa 3.19 mg/L 3.30 – 19.40 mg/L Free Lambda 163.95 …

Carfilzomib and Cytoxan

Well, the daratumumab and pomalyst train has left the station without me.  My doctor decided that it wasn’t helping me anymore, so I’ve moved on. A few weeks ago I started carfilzomib (Kyprolis) and cyclophosphamide (Cytoxan).  I also have 20 mg of dexamethasone every week. I have carfilzomib on Thursdays and Fridays and Cytoxan only …

Darzalex schedule change

I recently had a change in my dara schedule. I had been going once every 4 weeks, prior to this month. My doctor decided to have me go every 2 weeks, starting this month (April, 2019). He wanted to give that a try because of an increase in k/l ratio. I still have a pretty …

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Still on Darzalex

This is just a quick update.  I’m still on Darzalex, but am also taking 2 mg of Pomalyst (pom) 21 days a month.  I’m not taking dex at the moment.  I just get 20 mg of dex with each dara infusion. We’ll see how that goes. For the last 3 or 4 months, I’ve been …

Darzalex as a single agent

I haven’t posted any updates lately. The reason is, after having had MM for so long, I just don’t think about it very much.  It’s not like it was in the beginning.  I used to wake up every day, and that was the first thing I’d think about. That was 2003.  It’s just a part […]

How green tea could help treat bone marrow disorders

Posted by Erika Ebsworth-Goold-WUSTL February 10th, 2017 http://www.futurity.org/amyloidosis-green-tea-1356282-2/ Scientists are investigating a compound found in green tea for often-fatal medical complications associated with bone-marrow disorders. Jan Bieschke of Washington University in St. Louis studies how proteins fold and shape themselves, and how these processes can contribute to a variety of diseases. He says the compound […]

Revlimid, Darzalex and Dex

It’s been ages since I posted, but that’s because there’s been nothing new to report. I recently began treatment with one of the new-ish monoclonal antibodies called Darzalex (daratumumab, aka dara).  In addition to Darzalex, I’m taking an older drug that I’ve used before, called Revlimid. Once a week, I take a 20mg dose of …

One of those weeks

I’m having one of those weeks in which I feel exhausted at the cellular level.  It wears me out to speak, even. I have new labs to post, but it’ll have to wait until I have a bit more energy. I think this has been building for a while now.  I decided that I’m going …