Alone

Faces look ugly when you’re alonePeople are strange – The DoorsIsolated. Neutropenic. EnduringWhile I feel good enough to write, here’s an update. I’ve been in “protective isolation” for 3 days now. The upside is that I’ve already seen 3 World Cup rugb…

The point of no return

Fight like a brave. Don’t be a slave. No one can tell you you’ve got to be afraidFight like a brave – Red Hot Chili PeppersDay +1 … and into the twilight zone …I had my melphalan on Wednesday. I was glad to get beyond the point of no retu…

Plumbcentre

I got two strong arms. Blessings of Babylon. Time to carry onThe Riddle – Nik Kershaw *Day -2I had a “PICC line” (catheter inserted via a vein) 7 years ago for my front line chemo. But in those days King’s insisted on a “Hickman line” (port i…

Lviving

There are no lions in EnglandLions – Ian Brown… Stop Press … Transplant next week !!! …I had another biopsy a couple of weeks ago. (I’ve lost count of how many that is now. 8? 9?) The good news is it was much better than before: a mere 10% plasma…

Dara

When I fall from the wagon, hiding from the businessmen, won’t you find a way for me somehow?Syrups – Foals… KFLC (29/4) = 272 … That’s a 1/3 drop, after 3 weeks of daratumumab … Currently on week 5 … It’s been a while. Much has changed. (Thoug…

Clotless

One reason I am reluctant to write here more, or more frequently, than I have to, is because it perpetuates the sense that this is some kind of soap opera. But although it has some soapy characteristics, and endless plot twists, I certainly don’t find …

A corner?

I think, at last, things have turned a corner. So it seems appropriate to bring you up to date.TreatmentI was on ixazomib & thalidomide from January until September last year. At the end of treatment we thought it had worked, if not amazingly, at l…

Brexshit

Like brexit, myeloma doesn’t go away just because you’re fed up talking about it. I’m conscious that plenty of my friends deserve an update – so I’m posting “from beyond the grave” of the blog. I’ll try to keep it brief.I’ve spent the last 2 months do…

Epilogue eleven

This is the end, beautiful friendThe End – The DoorsAnd that’s it. Fin. (There may be a role for some brief updates in the future – we’ll see.)Last year, in Japan, we visited a theme park in the city of Beppu, in Kyushu, It boasted of being one of the …