Dara

When I fall from the wagon, hiding from the businessmen, won’t you find a way for me somehow?Syrups – Foals… KFLC (29/4) = 272 … That’s a 1/3 drop, after 3 weeks of daratumumab … Currently on week 5 … It’s been a while. Much has changed. (Thoug…

Clotless

One reason I am reluctant to write here more, or more frequently, than I have to, is because it perpetuates the sense that this is some kind of soap opera. But although it has some soapy characteristics, and endless plot twists, I certainly don’t find …

A corner?

I think, at last, things have turned a corner. So it seems appropriate to bring you up to date.TreatmentI was on ixazomib & thalidomide from January until September last year. At the end of treatment we thought it had worked, if not amazingly, at l…

Brexshit

Like brexit, myeloma doesn’t go away just because you’re fed up talking about it. I’m conscious that plenty of my friends deserve an update – so I’m posting “from beyond the grave” of the blog. I’ll try to keep it brief.I’ve spent the last 2 months do…

Epilogue eleven

This is the end, beautiful friendThe End – The DoorsAnd that’s it. Fin. (There may be a role for some brief updates in the future – we’ll see.)Last year, in Japan, we visited a theme park in the city of Beppu, in Kyushu, It boasted of being one of the …

Epilogue ten

I think I have the best of me inside my head. No one else competes with me, I think I’m greatEat My Dust You Insensitive Fuck – The Catherine WheelEnough of all this chit, Alex, how are you, exactly?If you’ve waded through this far, you really must be …

Epilogue nine

I’m the type of guy to boost your self esteem. We party all night cos it’s you, you, you everyday. Self obsessed and sexxee all the waySelf Obsessed and Sexxee – Sonic YouthRelationship under constructionI don’t feel I’ve been able to be a good dad, hu…

Epilogue eight

Do you realize that you have the most beautiful face? Do you realize we’re floating in space?Do You Realize?? – The Flaming LipsA sense of purposeThis year – if I haven’t mentioned it already – has been pretty rough. One consequence of being perma…

Epilogue seven

Money, it’s a hit. Don’t give me that do goody good bullshitMoney – Pink FloydFinancial disservicesI arrived at university enrolled on a course that I didn’t enjoy. I had taken a “gap year”, during which I had lived in rural Zimbabwe, teaching (ve…