Release

I’ve got to stand and fightRelease the pressure – LeftfieldI’m out!I was so surprised, on Thursday, when the doctor suggested I might be ready to go home, that I had to ask twice what my blood counts were. I thought I’d got at least another four or fiv…

Alone

Faces look ugly when you’re alonePeople are strange – The DoorsIsolated. Neutropenic. EnduringWhile I feel good enough to write, here’s an update. I’ve been in “protective isolation” for 3 days now. The upside is that I’ve already seen 3 World Cup rugb…

The point of no return

Fight like a brave. Don’t be a slave. No one can tell you you’ve got to be afraidFight like a brave – Red Hot Chili PeppersDay +1 … and into the twilight zone …I had my melphalan on Wednesday. I was glad to get beyond the point of no retu…

Plumbcentre

I got two strong arms. Blessings of Babylon. Time to carry onThe Riddle – Nik Kershaw *Day -2I had a “PICC line” (catheter inserted via a vein) 7 years ago for my front line chemo. But in those days King’s insisted on a “Hickman line” (port i…

Lviving

There are no lions in EnglandLions – Ian Brown… Stop Press … Transplant next week !!! …I had another biopsy a couple of weeks ago. (I’ve lost count of how many that is now. 8? 9?) The good news is it was much better than before: a mere 10% plasma…

Dara

When I fall from the wagon, hiding from the businessmen, won’t you find a way for me somehow?Syrups – Foals… KFLC (29/4) = 272 … That’s a 1/3 drop, after 3 weeks of daratumumab … Currently on week 5 … It’s been a while. Much has changed. (Thoug…

Clotless

One reason I am reluctant to write here more, or more frequently, than I have to, is because it perpetuates the sense that this is some kind of soap opera. But although it has some soapy characteristics, and endless plot twists, I certainly don’t find …

A corner?

I think, at last, things have turned a corner. So it seems appropriate to bring you up to date.TreatmentI was on ixazomib & thalidomide from January until September last year. At the end of treatment we thought it had worked, if not amazingly, at l…